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AIDS Care ; 35(8): 1125-1138, 2023 08.
Artigo em Inglês | MEDLINE | ID: mdl-34152886

RESUMO

Malawi has one of the highest HIV prevalence rates (8.9%), and data suggest 27% pain prevalence among adolescents living with HIV (ALHIV) in Malawi. Pain among ALHIV is often under-reported and pain management is suboptimal. We aimed to explore stakeholders' perspectives and experiences on pain self-management for ALHIV and chronic pain in Malawi. We conducted cross-sectional in-depth qualitative interviews with adolescents/caregiver dyads and healthcare professionals working in HIV clinics. Data were audio-recorded, transcribed verbatim and translated (where applicable) then imported into NVivo version 12 software for framework analysis. We identified three main themes: (1) Experiencing "total pain": adolescents experienced physical, psychosocial, and spiritual pain which impacted their daily life activities. (2) Current self-management approaches: participants prefer group-based self-management approaches facilitated by healthcare professionals or peers at the clinic focussing on self-management of physical, psychosocial, and spiritual pain. (3) Current pain strategies: participants used prescribed drugs, traditional medicine, and non-pharmacological interventions, such as exercises to manage pain. A person-centred care approach to self-management of chronic pain among ALHIV is needed to mitigate the impact of pain on their daily activities. There is a need to integrate self-management approaches within the existing structures such as teen clubs in primary care.


Assuntos
Síndrome da Imunodeficiência Adquirida , Dor Crônica , Infecções por HIV , Autogestão , Humanos , Adolescente , Malaui/epidemiologia , Infecções por HIV/epidemiologia , Infecções por HIV/terapia , Infecções por HIV/psicologia , Manejo da Dor , Dor Crônica/epidemiologia , Dor Crônica/terapia , Estudos Transversais
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