Pesquisa | BVS Violência e Saúde

1.

Addressing underrepresentation in genomics research through community engagement.

Lemke, Amy A; Esplin, Edward D; Goldenberg, Aaron J; Gonzaga-Jauregui, Claudia; Hanchard, Neil A; Harris-Wai, Julie; Ideozu, Justin E; Isasi, Rosario; Landstrom, Andrew P; Prince, Anya E R; Turbitt, Erin; Sabatello, Maya; Schrier Vergano, Samantha A; Taylor, Matthew R G; Yu, Joon-Ho; Brothers, Kyle B; Garrison, Nanibaa' A.

Am J Hum Genet ; 109(9): 1563-1571, 2022 09 01.

Artigo em Inglês | MEDLINE | ID: mdl-36055208

2.

The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination.

Joly, Yann; Huerne, Katherine; Arych, Mykhailo; Bombard, Yvonne; De Paor, Aisling; Dove, Edward S; Granados Moreno, Palmira; Ho, Calvin W L; Ho, Chih-Hsing; Van Hoyweghen, Ine; Kim, Hannah; Lebret, Audrey; Minssen, Timo; Ó Cathaoir, Katharina; Prince, Anya E R; Nair, Athira P S; Otlowski, Margaret; Pepper, Michael S; Sladek, Rob; Song, Lingqiao; Voigt, Torsten H; Zawati, Ma'n H; Dalpé, Gratien.

Trends Genet ; 37(11): 951-954, 2021 11.

Artigo em Inglês | MEDLINE | ID: mdl-34503867

3.

Healthcare utilization and behavior changes following workplace genetic testing at a large U.S. healthcare system.

Charnysh, Elizabeth; Pal, Subhamoy; Reader, Jonathan M; Uhlmann, Wendy; McCain, Sarah; Sanghavi, Kunal; Blasco, Drew; Brandt, Rachael; Feero, William Gregory; Ferber, Rebecca; Giri, Veda N; Hendy, Katherine; Prince, Anya E R; Lee, Charles; Roberts, J Scott.

Genet Med ; : 101160, 2024 May 07.

Artigo em Inglês | MEDLINE | ID: mdl-38733246

4.

Perceptions and beliefs of community gatekeepers about genomic risk information in African cleft research.

Oladayo, Abimbola M; Odukoya, Oluwakemi; Sule, Veronica; Molobe, Ikenna; Busch, Tamara; Akodu, Babatunde; Adeyemo, Wasiu L; Gowans, Lord J J; Eshete, Mekonen; Alade, Azeez; Awotoye, Waheed; Adeyemo, Adebowale A; Mossey, Peter A; Prince, Anya E R; Murray, Jeffrey C; Butali, Azeez.

BMC Public Health ; 24(1): 507, 2024 Feb 17.

Artigo em Inglês | MEDLINE | ID: mdl-38365612

5.

A step forward, but still inadequate: Australian health professionals' views on the genetics and life insurance moratorium.

Tiller, Jane M; Keogh, Louise A; McInerney-Leo, Aideen M; Belcher, Andrea; Barlow-Stewart, Kristine; Boughtwood, Tiffany; Gleeson, Penny; Dowling, Grace; Prince, Anya; Bombard, Yvonne; Joly, Yann; Delatycki, Martin; Winship, Ingrid M; Otlowski, Margaret; Lacaze, Paul.

J Med Genet ; 59(8): 817-826, 2022 08.

Artigo em Inglês | MEDLINE | ID: mdl-34544841

6.

How should we address the inevitable harms from non-negligent variant reclassification in predictive genetic testing?

Rashkin, Misha; Kingham, Kerry; Lara-Otero, Karlena; Mckenna, Meghan; Villiers, Janelle; Worthington, Monty Mykolas; Prince, Anya.

J Genet Couns ; 32(1): 18-30, 2023 02.

Artigo em Inglês | MEDLINE | ID: mdl-36260514

7.

The goldilocks conundrum: Disclosing discrimination risks in informed consent.

Prince, Anya E R; Suter, Sonia M; Uhlmann, Wendy R; Scherer, Aaron M.

J Genet Couns ; 31(6): 1383-1393, 2022 12.

Artigo em Inglês | MEDLINE | ID: mdl-35930740

8.

The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.

Lenartz, Andrea; Scherer, Aaron M; Uhlmann, Wendy R; Suter, Sonia M; Anderson Hartley, Colleen; Prince, Anya E R.

Genet Med ; 23(12): 2324-2334, 2021 12.

Artigo em Inglês | MEDLINE | ID: mdl-34400812

9.

A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27.

Golinghorst, Dexter R; Prince, Anya E R.

J Genet Couns ; 29(6): 928-935, 2020 12.

Artigo em Inglês | MEDLINE | ID: mdl-31850620

10.

Referencing BRCA in hereditary cancer risk discussions: In search of an anchor in a sea of uncertainty.

Waltz, Margaret; Prince, Anya E R; O'Daniel, Julianne M; Foreman, Ann Katherine M; Powell, Bradford C; Berg, Jonathan S.

J Genet Couns ; 29(6): 949-959, 2020 12.

Artigo em Inglês | MEDLINE | ID: mdl-31967382

11.

Shared decision-making in vascular surgery.

Xu, Jun; Prince, Anya E R.

J Vasc Surg ; 70(5): 1711-1715, 2019 11.

Artigo em Inglês | MEDLINE | ID: mdl-31068265

12.

Analysis of state laws on informed consent for clinical genetic testing in the era of genomic sequencing.

Spector-Bagdady, Kayte; Prince, Anya E R; Yu, Joon-Ho; Appelbaum, Paul S.

Am J Med Genet C Semin Med Genet ; 178(1): 81-88, 2018 03.

Artigo em Inglês | MEDLINE | ID: mdl-29566453

13.

Age and perceived risks and benefits of preventive genomic screening.

Waltz, Margaret; Cadigan, R Jean; Prince, Anya E R; Skinner, Debra; Henderson, Gail E.

Genet Med ; 20(9): 1038-1044, 2018 09.

Artigo em Inglês | MEDLINE | ID: mdl-29215654

14.

The Limits of a Voluntary Framework in an Unethical Data Ecosystem.

Fowler, Leah R; Prince, Anya E R; Ulrich, Michael R.

Am J Bioeth ; 23(11): 39-41, 2023 11.

Artigo em Inglês | MEDLINE | ID: mdl-37879008

15.

The Slippery Slope of Prenatal Testing for Social Traits.

Canter, Courtney; Foley, Kathleen; Callier, Shawneequa L; Meagher, Karen M; Waltz, Margaret; Washington, Aurora; Cadigan, R Jean; Prince, Anya E R.

Am J Bioeth ; 23(3): 36-38, 2023 03.

Artigo em Inglês | MEDLINE | ID: mdl-36919542

16.

The Genetic Information Privacy Act: Drawbacks and Limitations.

Prince, Anya E R.

JAMA ; 330(21): 2049-2050, 2023 12 05.

Artigo em Inglês | MEDLINE | ID: mdl-37906184

17.

Privacy and the Genetic Community.

Leib-Neri, Marisa A; Prince, Anya E R.

Am J Bioeth ; 22(7): 70-72, 2022 07.

Artigo em Inglês | MEDLINE | ID: mdl-35737492

18.

Correction: The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.

Lenartz, Andrea; Scherer, Aaron M; Uhlmann, Wendy R; Suter, Sonia M; Anderson Hartley, Colleen; Prince, Anya E R.

Genet Med ; 23(12): 2471, 2021 Dec.

Artigo em Inglês | MEDLINE | ID: mdl-34446926

19.

TANTAMOUNT TO FRAUD?: EXPLORING NON-DISCLOSURE OF GENETIC INFORMATION IN LIFE INSURANCE APPLICATIONS AS GROUNDS FOR POLICY RESCISSION.

Prince, Anya E R.

Health Matrix Clevel ; 26: 255-307, 2016.

Artigo em Inglês | MEDLINE | ID: mdl-27263254

20.

Genetic information, non-discrimination, and privacy protections in genetic counseling practice.

Prince, Anya E R; Roche, Myra I.

J Genet Couns ; 23(6): 891-902, 2014 Dec.

Artigo em Inglês | MEDLINE | ID: mdl-25063358

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