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1.
BMC Pregnancy Childbirth ; 22(1): 180, 2022 Mar 03.
Artigo em Inglês | MEDLINE | ID: mdl-35241007

RESUMO

BACKGROUND: Identifying women with perinatal anxiety is important in order to provide timely support and prevent adverse outcomes. Self-report instruments are commonly used in maternity settings. An alternative is to ask women directly whether they self-identify as having anxiety. We examine the agreement between self-reported and self-identified anxiety at 3 months postpartum and compare the characteristics of women with self-reported and self-identified anxiety. METHODS: A secondary analysis of national maternity surveys conducted in 2014 in England and Northern Ireland was conducted. Self-reported anxiety was assessed using the Edinburgh Postnatal Depression Scale anxiety subscale (EPDS-3A). Agreement between self-reported and self-identified anxiety was measured using Cohen's kappa. Logistic regression was used to identify characteristics of women in each group. RESULTS: In our sample of 6752 women, 14.2% had self-reported anxiety, 5.9% had self-identified anxiety and 3.5% were positive on both measures. Among those with self-identified anxiety, 58.1% also had self-reported anxiety. Of those with self-reported anxiety, 24.4% also had self-identified anxiety. Statistical agreement between the two measures was minimal with Cohen's kappa 0.283 at an EPDS-3A threshold of ≥6. Among both self-identified and self-reported anxiety groups, psychological factors were the strongest associated factors. Women with self-reported anxiety had higher odds of being from Northern Ireland (OR 1.81); having a mixed or unhappy reaction to the pregnancy (OR 1.65); living without a partner (aOR 1.37); and antenatal depression (aOR 1.32). Women with self-identified anxiety had higher odds of physical problems (OR 1.84); and being of Black or minority ethnicity (OR 0.39). CONCLUSIONS: Asking postnatal women directly whether they self-identify as having anxiety identifies a different group of women from those who score highly on self-report measures. Women with self-identified anxiety may benefit from further follow-up and support.


Assuntos
Ansiedade/diagnóstico , Período Pós-Parto/psicologia , Adulto , Ansiedade/epidemiologia , Inglaterra , Feminino , Humanos , Irlanda do Norte , Prevalência , Escalas de Graduação Psiquiátrica , Autorrelato , Autoavaliação (Psicologia)
2.
Qual Health Res ; 30(12): 1876-1887, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-32940583

RESUMO

Postnatal care is the aspect of maternity care with which women in England are least satisfied. Little is known about first-time mothers' expectations of postnatal care, or how these expectations relate to their experiences and appraisal of care. Thirty-two first-time mothers took part in a longitudinal qualitative descriptive study, based on two semi-structured interviews-the first in pregnancy, and the second 2 to 3 months after birth. Trajectory analysis was used to identify the thematic patterns in the relationships between postnatal care expectations, needs, experiences, and confidence. Five trajectories were identified, showing that mothers' satisfaction with postnatal care and confidence were primarily influenced not by the extent to which their expectations were met but the varied extent to which their individual postnatal needs were met. Rapid and responsive assessment of needs both antenatally and postnatally, and appropriate adjustment of care, is key in supporting women effectively at this time.


Assuntos
Serviços de Saúde Materna , Mães , Cuidado Pós-Natal , Inglaterra , Feminino , Humanos , Motivação , Gravidez , Pesquisa Qualitativa
3.
BMC Pregnancy Childbirth ; 19(1): 21, 2019 Jan 10.
Artigo em Inglês | MEDLINE | ID: mdl-30630445

RESUMO

BACKGROUND: Disadvantaged pregnant women and new mothers are at increased risk of psychosocial stress, anxiety and depression. As well as affecting birth outcomes and child development, poor maternal emotional wellbeing can inhibit the development of parenting self-efficacy and successful adjustment to the maternal role. Social support is a protective factor against antenatal and postnatal depression, anxiety and stress, and improves mothers' confidence in infant care. Community doula programmes have been developed to meet the social support and information needs of disadvantaged women. In these programmes trained volunteer doulas support mothers during pregnancy, at birth and for a short period postnatally. METHODS: This was a descriptive qualitative study, informed by phenomenological social psychology, exploring mothers' and doulas' experiences of antenatal and postnatal community doula support. Semi-structured qualitative interviews were undertaken with 13 disadvantaged mothers and 19 doulas at three community volunteer doula projects in England. Interviews were audio-recorded and transcripts were analysed using inductive thematic analysis. RESULTS: The overarching theme emerging from the analysis was "Supporting the mother to succeed and flourish". There were five subthemes: "Overcoming stress, anxiety and unhappiness", "Becoming knowledgeable and skilful", "Developing self-esteem and self-efficacy", "Using services effectively", and "Becoming locally connected". Doulas believed that their community role was at least as important as their role at births. Their support was highly valued by vulnerable mothers and helped to improve their parenting confidence and skills. CONCLUSIONS: Volunteer doula support before and after birth can have a positive impact on maternal emotional wellbeing, by reducing anxiety, unhappiness and stress, and increasing self-esteem and self-efficacy. Doulas help mothers feel more knowledgeable and skilful, support them to make effective use of maternity services, and enable them to build social ties in their community. To facilitate the best service for vulnerable mothers at the end of doula support, doula projects should consider formalising their relationship with other community organisations that can offer ongoing one-to-one or group support. They might also alleviate some of the potential distress caused by the ending of the doula relationship by increasing the flexibility of the ending, or by organising or permitting informal low level contact.


Assuntos
Ansiedade/psicologia , Depressão/psicologia , Doulas , Mães/psicologia , Período Pós-Parto/psicologia , Gravidez/psicologia , Classe Social , Apoio Social , Estresse Psicológico/psicologia , Adulto , Educação não Profissionalizante , Inglaterra , Feminino , Humanos , Pessoa de Meia-Idade , Pesquisa Qualitativa , Autoimagem , Autoeficácia , Voluntários , Adulto Jovem
4.
BMC Pregnancy Childbirth ; 19(1): 167, 2019 May 14.
Artigo em Inglês | MEDLINE | ID: mdl-31088487

RESUMO

BACKGROUND: As maternity services evolve and the population of women served also changes, there is a continuing need to effectively document the views of women with recent experience of care. A woman's maternity experience can have a positive or negative effect upon her emotional well-being and health, in the immediate and the long-term, which can also impact the infant and the wider family system. Measuring women's perceptions of maternity services is an important way of monitoring the quality of care provision, as well as providing key indicators to organisations of the services that they are providing. It follows that, without information identifying possible areas in need of improvement, it is not clear what changes should be made to improve the experiences of women during their journey through maternity services from pregnancy to the early weeks at home with a new baby . The objective is to describe the development process and psychometric properties of a measure of women's experience of maternity care covering the three distinctly different phases of maternity - pregnancy, labour and birth, and the early postnatal period. METHODS: Data from a national survey of women who had recently given birth (n = 504) were used. Exploratory and confirmatory factor analytic methods were employed. The measure was assessed for underlying latent factor structure, as well as for reliability, internal consistency, and validity (predictive, convergent and discriminant). RESULTS: The models developed confirmed the use of three separate, but related scales about experience of maternity care during pregnancy, labour and birth and the postnatal period. Data reduction was effective, resulting in a measure with 36 items (12 per scale). CONCLUSION: The need for a psychometrically robust and qualitatively comprehensive measure of women's experience of maternity care has been addressed in the development and validation of this prototype measure. The whole measure can be used at one time point, or the three separate subscales used as individual measures of experience during particular phases of the maternity journey with identified factor structures in their own right.


Assuntos
Parto Obstétrico/normas , Modelos Estatísticos , Satisfação do Paciente , Cuidado Pós-Natal/normas , Cuidado Pré-Natal/normas , Inquéritos e Questionários , Adulto , Inglaterra , Análise Fatorial , Feminino , Humanos , Gravidez , Psicometria , Reprodutibilidade dos Testes
5.
BMC Womens Health ; 19(1): 42, 2019 03 04.
Artigo em Inglês | MEDLINE | ID: mdl-30832642

RESUMO

BACKGROUND: Mode of birth has been found to be associated with maternal postnatal adjustment with women who have Caesarean Sections (CS) thought to be at higher risk of emotional distress. However the relationship is complex and studies have demonstrated mixed findings. The aim of this study is to evaluate a model that explores the direct relationship between mode of birth and postnatal maternal adjustment at 3 months and indirect relationships through psychosocial variables. METHODS: A secondary analysis of a population-based survey conducted in England, UK in 2014. The analysis included primiparous women with singleton babies who provided information about mode of birth (n = 2139). RESULTS: Maternal postnatal adjustment, as measured by Maternal postnatal wellbeing and Satisfaction with care during labour and birth, varied by mode of birth. Women who had an unplanned CS had the poorest postnatal adjustment. Mode of birth was not associated with Maternal/infant sense of belonging. Four out of the five proposed mediation variables (Perceived control, Maternal expectation, Support in labour, How long until the mother held her baby), showed partial mediation of the relationship between mode of birth and both Maternal postnatal wellbeing and Satisfaction with care during labour and birth. The strongest mediator was Perceived control and the only variable not to show a significant mediation effect was Health of the infant at 3 months. CONCLUSIONS: Birth by unplanned, but not planned, caesarean section was associated with poorer maternal adjustment and instrumental birth was associated with lower maternal satisfaction with labour and birth. These relationships were found to be partially mediated by psychosocial variables. Psychosocial interventions in the perinatal period should be considered to optimise maternal postnatal adjustment.


Assuntos
Adaptação Psicológica , Cesárea/psicologia , Extração Obstétrica/psicologia , Mães/psicologia , Preferência do Paciente/psicologia , Preferência do Paciente/estatística & dados numéricos , Gestantes/psicologia , Adulto , Cesárea/estatística & dados numéricos , Inglaterra , Extração Obstétrica/estatística & dados numéricos , Feminino , Humanos , Mães/estatística & dados numéricos , Gravidez , Inquéritos e Questionários
7.
Birth ; 45(3): 275-285, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-29436049

RESUMO

BACKGROUND: Most research on women experiencing stillbirth relies on online user group surveys or qualitative interviews. The objective of this study was to investigate the experience of women who are at a higher risk of stillbirth, living in areas of greatest deprivation, and are commonly not well represented. METHODS: This study used birth and death registrations in 2012-2013 to identify a sample of mothers whose babies had died as a result of stillbirth. These women were sent a survey 6-9 months after the stillbirth. We undertook descriptive analysis of quantitative data and used binary logistic regression with the Index of Multiple Deprivation as a measure of disadvantage. We used thematic analysis to describe free text responses. RESULTS: The survey response rate was 30% (N = 473). Ethnic minority, younger age, and single parenthood were associated with disadvantage. Women residents in the most deprived areas perceived care more negatively: during labor they were significantly less likely to be spoken to by medical staff so they could understand (73% compared with 90%, adjusted odds ratio [aOR] 0.33 [95% confidence interval {CI} 0.18-0.65]), or treated with respect by midwives (79% compared with 90%, aOR 0.41 [95% CI 0.22-0.77]). The qualitative themes identified were: "Difficulty in accessing care," "More could have been done," "Ineffective communication," and "Cared for and not cared for" which support the quantitative findings. CONCLUSION: Women living in the most deprived areas reported poorer experiences of care compared with more advantaged women. All women need compassionate and sensitive care around the time of a stillbirth.


Assuntos
Mães/psicologia , Satisfação do Paciente/estatística & dados numéricos , Cuidado Pós-Natal/normas , Natimorto , Populações Vulneráveis , Adolescente , Adulto , Inglaterra , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Entrevistas como Assunto , Modelos Logísticos , Gravidez , Adulto Jovem
8.
J Reprod Infant Psychol ; 36(2): 120-131, 2018 04.
Artigo em Inglês | MEDLINE | ID: mdl-29517345

RESUMO

OBJECTIVE: This study aimed to assess the effects on partners' health and well-being of holding a stillborn baby. BACKGROUND: Findings from quantitative and qualitative studies have produced inconsistent results concerning the effects of holding a stillborn baby on parents. METHODS: Secondary analyses were conducted on postal questionnaire data relating to 455 partners of women who had a stillbirth. Women answered questions about their partners' behaviour, perceptions of care, mental health and well-being at three and nine months after the stillbirth. Demographic, clinical and care characteristics were compared between partners who, according to the mothers, did and did not hold their baby. Sub-group analyses assessed hypothesised moderating effects. RESULTS: Mothers reported that most partners saw (92%) and held (82%) their stillborn baby. However, partners born outside the UK were less likely to have held their baby. Higher gestational age, shorter time interval between antepartum death and delivery, and mother's holding the baby all predicted a higher rate of partner's holding. There was a consistent negative effect of holding the baby across mental health and well-being outcomes, although after adjustment only higher odds of depression (OR 2.72, 95% CI 1.35-5.50) and post-traumatic stress type symptoms (OR 1.95, 95% CI 1.01-3.78) at 3 months were significantly associated with having held the baby following stillbirth. CONCLUSIONS: This study is the first to assess the impact of holding the baby on partners' mental health and well-being. The prevalence of depression and anxiety were high, and the negative effects of holding the baby were significant 3 months later.


Assuntos
Pai/psicologia , Saúde Mental , Mães/psicologia , Natimorto/psicologia , Adolescente , Adulto , Ansiedade/psicologia , Depressão/psicologia , Inglaterra , Feminino , Humanos , Masculino , Pais/psicologia , Gravidez , Pesquisa Qualitativa , Inquéritos e Questionários , Adulto Jovem
9.
Lancet ; 387(10018): 604-616, 2016 Feb 06.
Artigo em Inglês | MEDLINE | ID: mdl-26794073

RESUMO

Despite the frequency of stillbirths, the subsequent implications are overlooked and underappreciated. We present findings from comprehensive, systematic literature reviews, and new analyses of published and unpublished data, to establish the effect of stillbirth on parents, families, health-care providers, and societies worldwide. Data for direct costs of this event are sparse but suggest that a stillbirth needs more resources than a livebirth, both in the perinatal period and in additional surveillance during subsequent pregnancies. Indirect and intangible costs of stillbirth are extensive and are usually met by families alone. This issue is particularly onerous for those with few resources. Negative effects, particularly on parental mental health, might be moderated by empathic attitudes of care providers and tailored interventions. The value of the baby, as well as the associated costs for parents, families, care providers, communities, and society, should be considered to prevent stillbirths and reduce associated morbidity.


Assuntos
Natimorto/economia , Custos e Análise de Custo , Saúde da Família , Feminino , Apoio Financeiro , Pesar , Custos de Cuidados de Saúde , Gastos em Saúde , Pessoal de Saúde/psicologia , Humanos , Renda , Pais/psicologia , Gravidez , Cuidado Pré-Natal/economia , Anos de Vida Ajustados por Qualidade de Vida , Previdência Social , Apoio Social , Estereotipagem , Natimorto/psicologia , Estresse Psicológico/etiologia
10.
BMC Pregnancy Childbirth ; 17(1): 51, 2017 02 02.
Artigo em Inglês | MEDLINE | ID: mdl-28148230

RESUMO

BACKGROUND: Preterm birth (PTB) is the leading cause of perinatal morbidity and mortality. Women with previous prenatal loss are at higher risk of preterm birth. A specialist antenatal clinic is considered as one approach to improve maternity and pregnancy outcomes. METHODS: A systematic review of quantitative, qualitative and mixed method studies conducted on women at high risk of preterm birth (PTB). The review primary outcomes were to report on the specialist antenatal clinics effect in preventing or reducing preterm birth, perinatal mortality and morbidity and women's perceptions and experiences of a specialist clinic whether compared or not compared with standard antenatal care. Other secondary maternal, infant and economic outcomes were also determined. A comprehensive search strategy was carried out in English within electronic databases as far back as 1980. The reviewers selected studies, assessed the quality, and extracted data independently. Results were summarized and tabulated. RESULTS: Eleven studies fully met the review inclusion criteria, ten were quantitative design studies and only one was a qualitative design study. No mixed method design study was included in the review. All were published after 1989, seven were conducted in the USA and four in the UK. Results from five good to low quality randomised controlled trials (RCTs), all conducted before 1990, did not illustrate the efficacy of the clinic in reducing preterm birth. Whereas results from more recent low quality cohort studies showed some positive neonatal outcomes. Themes from one good quality qualitative study reflected on the emotional and psychological need to reduce anxiety and stress of women referred to such a clinic. Women expressed their negative emotional responses at being labelled as high risk and positive responses to being assessed and treated in the clinic. Women also reported that their partners were struggling to cope emotionally. CONCLUSIONS: Findings from this review were mixed. Evidence from cohort studies indicated a specialist clinic may be a means of predicting or preventing preterm birth. Testing this in a randomised controlled trial is desirable, though may be hard to achieve due to the growing focus of such clinics on managing women at high risk of preterm birth. Ongoing research has to recognize women's experiences and perceptions of such a clinic. Further clarification of the optimal referral route and a clear and standardized management and cost economic evaluation plan are also required. Fathers support and experience of PTB clinics should also be included in further research.


Assuntos
Nascimento Prematuro/epidemiologia , Nascimento Prematuro/prevenção & controle , Cuidado Pré-Natal/métodos , Pesquisa Qualitativa , Feminino , Saúde Global , Humanos , Recém-Nascido , Mortalidade Perinatal/tendências , Gravidez , Resultado da Gravidez
11.
BMC Pregnancy Childbirth ; 17(1): 28, 2017 01 13.
Artigo em Inglês | MEDLINE | ID: mdl-28086827

RESUMO

BACKGROUND: The transition to parenthood is a potentially vulnerable time for mothers' mental health and approximately 9-21% of women experience depression and/or anxiety at this time. Many more experience sub-clinical symptoms of depression and anxiety, as well as stress, low self-esteem and a loss of confidence. Women's emotional wellbeing is more at risk if they have little social support, a low income, are single parents or have a poor relationship with their partner. Peer support can comprise emotional, affirmational, informational and practical support; evidence of its impact on emotional wellbeing during pregnancy and afterwards is mixed. METHODS: This was a descriptive qualitative study, informed by phenomenological social psychology, exploring women's experiences of the impact of organised peer support on their emotional wellbeing during pregnancy and in early parenthood. Semi-structured qualitative interviews were undertaken with women who had received peer support provided by ten projects in different parts of England, including both projects offering 'mental health' peer support and others offering more broadly-based peer support. The majority of participants were disadvantaged Black and ethnic minority women, including recent migrants. Interviews were audio-recorded and transcripts were analysed using inductive thematic analysis. RESULTS: 47 mothers were interviewed. Two key themes emerged: (1) 'mothers' self-identified emotional needs', containing the subthemes 'emotional distress', 'stressful circumstances', 'lack of social support', and 'unwilling to be open with professionals'; and (2) 'how peer support affects mothers', containing the subthemes 'social connection', 'being heard', 'building confidence', 'empowerment', 'feeling valued', 'reducing stress through practical support' and 'the significance of "mental health" peer experiences'. Women described how peer support contributed to reducing their low mood and anxiety by overcoming feelings of isolation, disempowerment and stress, and increasing feelings of self-esteem, self-efficacy and parenting competence. CONCLUSION: One-to-one peer support during pregnancy and after birth can have a number of interrelated positive impacts on the emotional wellbeing of mothers. Peer support is a promising and valued intervention, and may have particular salience for ethnic minority women, those who are recent migrants and women experiencing multiple disadvantages.


Assuntos
Mães/psicologia , Grupo Associado , Complicações na Gravidez/psicologia , Grupos de Autoajuda , Apoio Social , Adaptação Psicológica , Adulto , Depressão , Emoções , Inglaterra , Feminino , Humanos , Recém-Nascido , Poder Familiar/psicologia , Gravidez , Pesquisa Qualitativa , Estresse Psicológico/psicologia
13.
BMC Pregnancy Childbirth ; 17(1): 44, 2017 01 26.
Artigo em Inglês | MEDLINE | ID: mdl-28122585

RESUMO

BACKGROUND: Research into the impact of unintended pregnancy on the wellbeing of women tends to focus on pregnancies ending in either termination or lone motherhood. Unintended pregnancy is common in partnered women, but little is known about the association between unintended pregnancy and postpartum affective disorders, such as depression and anxiety in this group. Poor relationship quality and lack of social support are considered risk factors for psychological distress (PD). We examined the association between unplanned motherhood and subsequent PD in partnered women, for whom evidence is sparse, accounting for the role of relationship quality and social support. METHODS: Data for 12,462 partnered mothers were drawn from the first survey of Millennium Cohort Study, completed at 9 months postpartum. Women reported whether their baby was planned, and how they felt when they discovered that they were pregnant. Pregnancy intention is categorised as "planned", "unplanned/happy", "unplanned/ambivalent" and "unplanned/unhappy". PD was assessed using the modified 9-item Rutter Malaise Inventory. Social support was measured by a composite score for perceived support, and a measure of actual support from friends and family. Relationship quality was assessed using a modified Golombok-Rust Inventory of Marital State. The effect of pregnancy intention on the odds of PD at 9 months was estimated, adjusting for potential confounding factors. All analyses were weighted for response and design effects. RESULTS: In total 32.8%(weighted) (4343/12462) of mothers reported an unplanned pregnancy: 23.3 wt% (3087) of mothers felt happy, 3.5 wt% (475) ambivalent, and 6.0 wt% (781) unhappy upon discovery. Unplanned pregnancy was associated with a significantly increased odds of PD compared to planned (OR 1.73 (95%CI: 1.53, 1.95)). This was more pronounced among women who reported negative or ambivalent feelings in early pregnancy (OR 2.72 (95%CI:2.17, 3.41) and 2.56 (95%CI:1.95, 3.34), respectively), than those who reported positive feelings (OR 1.39 (95%CI:1.21, 1.60)). Adjustment for relationship quality, in particular, reduced odds of PD after unplanned pregnancy (e.g. from 2.19 (95%C: 1.74, 2.74) to 1.63 (95% CI: 1.29, 2.07 in the unplanned, unhappy group compared to the planned). CONCLUSIONS: A third of partnered mothers reported that their pregnancy was unintended, yet this group is under-researched. Unplanned motherhood was associated with increased risk of PD at 9 months postpartum, particularly among women who felt unhappy or ambivalent at the start. The roles of relationship quality and social support require further investigation, as possible means to intervene and improve maternal wellbeing.


Assuntos
Etnicidade , Serviços de Planejamento Familiar/organização & administração , Mães/psicologia , Gravidez não Planejada/psicologia , Parceiros Sexuais/psicologia , Apoio Social , Estresse Psicológico/etiologia , Adulto , Estudos Transversais , Feminino , Seguimentos , Humanos , Incidência , Lactente , Masculino , Irlanda do Norte/epidemiologia , Gravidez , Estudos Prospectivos , Fatores de Risco , Escócia/epidemiologia , Estresse Psicológico/etnologia , Estresse Psicológico/psicologia , País de Gales/epidemiologia
14.
BMC Pregnancy Childbirth ; 17(1): 277, 2017 Aug 29.
Artigo em Inglês | MEDLINE | ID: mdl-28851307

RESUMO

BACKGROUND: The current study sought to develop a short birth satisfaction indicator utilising items from the Birth Satisfaction Scale-Revised (BSS-R) for use as a brief measure of birth satisfaction and as a possible key performance indicator for perinatal service delivery evaluation. Building on the recently developed BSS-R, the study aimed to develop a simplified version of the instrument to assess birth satisfaction easily that could work as a short evaluative measure of clinical service delivery for labour and birth that is consistent with policy documents, placing women at the centre of the birth experience. METHODS: The six item Birth Satisfaction Scale-Revised Indicator (BSS-RI) was embedded within the 2014 National Maternity Survey for England. A random selection of mothers who had given birth in a two week period in England were surveyed three months after the birth. Using a two-stage design and split-half dataset, exploratory factor analysis, confirmatory factor analysis, internal consistency, convergent, divergent and known-groups discriminant validity evaluation were conducted in a secondary analysis of the survey data. RESULTS: Using this large population based survey of recent mothers the short revised measure was found to comprise two distinct domains of birth satisfaction, 'stress and emotional response to labour and birth' and 'quality of care'. The psychometric qualities of the tool were robust as were the indices of validity and reliability evaluated. CONCLUSION: The BSS-RI represents a short easily administered and scored measure of women's satisfaction with care and the experience of labour and birth. The instrument is potentially useful for researchers, service evaluation and policy makers.


Assuntos
Parto Obstétrico/psicologia , Parto/psicologia , Satisfação do Paciente , Assistência Perinatal/normas , Garantia da Qualidade dos Cuidados de Saúde/métodos , Adulto , Inglaterra , Análise Fatorial , Feminino , Humanos , Gravidez , Psicometria , Reprodutibilidade dos Testes , Adulto Jovem
15.
BMC Pregnancy Childbirth ; 17(1): 333, 2017 Oct 02.
Artigo em Inglês | MEDLINE | ID: mdl-28969596

RESUMO

BACKGROUND: Following a perinatal death, a formal standardised multi-disciplinary review should take place, to learn from the death of a baby and facilitate improvements in future care. It has been recommended that bereaved parents should be offered the opportunity to give feedback on the care they have received and integrate this feedback into the perinatal mortality review process. However, the MBRRACE-UK Perinatal Confidential Enquiry (2015) found that only one in 20 cases parental concerns were included in the review. Although guidance suggests parental opinion should be sought, little evidence exists on how this may be incorporated into the perinatal mortality review process. The purpose of the PARENTS study was to investigate bereaved parents' views on involvement in the perinatal mortality review process. METHODS: A semi-structured focus group of 11 bereaved parents was conducted in South West England. A purposive sampling technique was utilised to recruit a diverse sample of women and their partners who had experienced a perinatal death more than 6 months prior to the study. A six-stage thematic analysis was followed to explore parental perceptions and expectations of the perinatal mortality review process. RESULTS: Four over-arching themes emerged from the analysis: transparency; flexibility combined with specificity; inclusivity; and a positive approach. It was evident that the majority of parents were supportive of their involvement in the perinatal mortality review process and they wanted to know the outcome of the meeting. It emerged that an individualised approach should be taken to allow flexibility on when and how they could contribute to the process. The emotional aspects of care should be considered as well as the clinical care. Parents identified that the whole care pathway should be examined during the review including antenatal, postnatal, and neonatal and community based care. They agreed that there should be an opportunity for parents to give feedback on both good and poor aspects of their care. CONCLUSION: Parents were unaware that a review of their baby's death took place in the hospital. Parental involvement in the perinatal mortality review process would promote an open culture in the healthcare system and learning from adverse events including deaths. Further research should focus on designing and evaluating a perinatal mortality review process where parental feedback will be integral.


Assuntos
Serviços de Saúde Materna/normas , Avaliação de Processos e Resultados em Cuidados de Saúde/métodos , Pais/psicologia , Participação do Paciente/psicologia , Morte Perinatal , Natimorto/psicologia , Adulto , Inglaterra , Feminino , Cuidados Paliativos na Terminalidade da Vida/psicologia , Cuidados Paliativos na Terminalidade da Vida/normas , Humanos , Recém-Nascido , Masculino , Gravidez , Pesquisa Qualitativa
16.
Health Expect ; 20(4): 751-759, 2017 08.
Artigo em Inglês | MEDLINE | ID: mdl-28001322

RESUMO

BACKGROUND: Preparing families and preterm infants for discharge is relatively unstructured in many UK neonatal units (NNUs). Family-centred neonatal care and discharge planning are recommended but variable. DESIGN AND PARTICIPANTS: Qualitative interviews with 37 parents of infants in NNUs, and 18 nursing staff and 5 neonatal consultants explored their views of discharge planning and perceptions of a planned family-centred discharge process (Train-to-Home). Train-to-Home facilitates communication between staff and parents throughout the neonatal stay, using a laminated train and parent booklets. RESULTS: Parents were overwhelmingly positive about Train-to-Home. They described being given hope, feeling in control and having something visual to show their baby's progress. They reported positive involvement of fathers and families, how predicted discharge dates helped them prepare for home and ways staff engaged with Train-to-Home when communicating with them. Nursing staff reactions were mixed-some were uncertain about when to use it, but found the visual images powerful. Medical staff in all NNUs were positive about the intervention recognizing that it helped in communicating better with parents. CONCLUSIONS: Using a parent-centred approach to communication and informing parents about the needs and progress of their preterm infant in hospital is welcomed by parents and many staff. This approach meets the recommended prioritization of family-centred care for such families. Predicted discharge dates helped parents prepare for home, and the ways staff engaged with Train-to-Home when communicating with them helped them feel more confident as well as having something visual to show their baby's progress.


Assuntos
Esperança , Recém-Nascido Prematuro , Pais/psicologia , Alta do Paciente , Comunicação , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Reino Unido
18.
BMC Psychiatry ; 16(1): 322, 2016 09 15.
Artigo em Inglês | MEDLINE | ID: mdl-27633660

RESUMO

BACKGROUND: Pregnancy and the postnatal period is a period of potential vulnerability for women and families. It is UK policy that all women are asked about their mental health and wellbeing early in pregnancy and following the birth to help detect potential problems and prevent serious adverse outcome. However, identification of mental health problems in pregnancy may be less than 50 %. The aim of the study was to find out which women are asked about their mood and mental health during pregnancy and postnatally, and about offer and uptake of treatment. METHODS: Secondary analysis of a national maternity survey carried out in 2014 which asked about sociodemographic factors, care in pregnancy, childbirth, and the postnatal period with specific questions on emotional and mental health. RESULTS: The usable response rate to the survey was 47 % (4571 women). Most women recalled being asked about their mental health in pregnancy (82 %) and in the postnatal period (90 %). However, antenatally, Asian and older women were less likely to be asked and to be offered treatment. In the postnatal period, differences were more marked. Non-white women, those living in more deprived areas, and those who had received less education were less likely to be asked about their mental health, to be offered treatment, and to receive support. Women with a trusting relationship with their midwife were more likely to be asked about their mental health. CONCLUSION: The inequities described in this study suggest that the inverse care law is operating in relation to this aspect of maternity care. Those women most likely to be in need of support and treatment are least likely to be offered it and may be at risk of serious adverse outcomes.


Assuntos
Transtornos Mentais/diagnóstico , Complicações na Gravidez/diagnóstico , Complicações na Gravidez/psicologia , Transtornos Puerperais/diagnóstico , Transtornos Puerperais/psicologia , Inquéritos e Questionários , Adolescente , Adulto , Fatores Etários , Etnicidade/psicologia , Etnicidade/estatística & dados numéricos , Feminino , Humanos , Transtornos Mentais/psicologia , Gravidez , Reino Unido , Adulto Jovem
19.
Birth ; 43(2): 151-8, 2016 06.
Artigo em Inglês | MEDLINE | ID: mdl-26806273

RESUMO

BACKGROUND: Pregnancy at a young age is a continuing public health concern strongly associated with socioeconomic deprivation, social isolation, and stigma. The objectives were to see whether, compared with women aged 21 or more, women aged 20 years or younger worried more about labor and birth, and had poorer maternal outcomes. Another objective was to investigate the extent to which worries about labor and birth mediated the associations between young age and outcomes. METHODS: A secondary analysis of data was conducted relating to 2,598 primiparous women's experience of maternity care in England in 2010. The survey collected data on care in the antenatal, intrapartum, and postnatal periods, and sociodemographic factors. A validated checklist measured worries about labor and birth. RESULTS: Compared with women aged 21 or more, women aged 20 years or younger worried more about labor and birth. The pain and duration of labor worried all women and those aged 20 years or younger were particularly worried about the uncertainty of labor onset, cesarean section birth, and about embarrassment. In logistic regression, after adjusting for potential confounders, young age was a significant independent risk factor for worries about pain and distress in labor, and self-reported depression at 1 and 3 months. However, young age was also significantly associated with having a normal vaginal delivery. CONCLUSIONS: It may be appropriate to focus support on women experiencing multiple disadvantage, rather than young age alone.


Assuntos
Ansiedade/epidemiologia , Cesárea/estatística & dados numéricos , Depressão/epidemiologia , Trabalho de Parto/psicologia , Idade Materna , Adolescente , Adulto , Inglaterra/epidemiologia , Feminino , Humanos , Modelos Logísticos , Paridade , Gravidez/psicologia , Escalas de Graduação Psiquiátrica , Adulto Jovem
20.
BMC Pregnancy Childbirth ; 15: 257, 2015 Oct 12.
Artigo em Inglês | MEDLINE | ID: mdl-26459281

RESUMO

BACKGROUND: Peer support is a flexible concept used in healthcare across diverse areas to describe the activities of individuals acting in a non-professional capacity offering support to others with whom they have some experience in common. There is little research on peer supporters and women supported in the context of the transition to parenthood and disadvantage. This study particularly focuses on peer support for women experiencing a range of vulnerabilities during pregnancy and the postnatal period, in projects which assigned trained volunteers to individual pregnant women. There were three core elements to the volunteers' support in these projects: active listening, providing information, and signposting to local services in the area. Many also offered practical support. METHODS: This was an descriptive qualitative study, informed by phenomenological social psychology, exploring experiences and perceptions of giving and receiving voluntary peer support during pregnancy and early parenthood in England, with a particular focus on disadvantaged women. Participants took part in semi-structured, audio-recorded interviews, the transcripts of which were analysed using thematic analysis. RESULTS: Forty-seven volunteers and 42 mothers were interviewed, from nine peer support projects. The overarching themes identified were (1) 'What is peer support?', containing two themes: 'befriending or mentoring', and 'responding to the individual'; (2) 'Who is a peer supporter?', containing two themes: 'someone like me', and 'valuing difference'; (3) 'The peer support relationship', containing five themes: 'a friend or a 'professional friend', 'building relationships of trust', 'avoiding dependency', 'managing endings', and 'how peer supporters differ from professionals'. CONCLUSION: A variety of models of volunteer peer support have been offered to pregnant women and new mothers in England. All create a structure for meaningful relationships of trust to occur between volunteers and vulnerable women. In the absence of agreed definitions for the nature and boundaries of peer support during pregnancy and early parenthood, it is important that projects provide clear information to referrers and service users about what they offer, without losing the valued flexibility and individuality of their service.


Assuntos
Poder Familiar/psicologia , Grupo Associado , Gravidez/psicologia , Apoio Social , Voluntários/psicologia , Adulto , Inglaterra , Feminino , Humanos , Relações Interpessoais , Mentores , Pessoa de Meia-Idade , Modelos Teóricos , Percepção , Pesquisa Qualitativa , Confiança , Adulto Jovem
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