Detalhe da pesquisa
1.
Understanding the experiences and perspectives of prenatal screening among a diverse cohort.
Prenat Diagn
; 43(5): 605-612, 2023 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-36588184
2.
The economic burden associated with stillbirth: A systematic review.
Birth
; 50(2): 300-309, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36774590
3.
Assessing clinical education tools for expanded carrier screening.
J Genet Couns
; 30(2): 606-615, 2021 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-33135283
4.
The limited use of US residual newborn screening dried bloodspots for health disparity research.
Genet Med
; 22(10): 1723-1726, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32533133
5.
Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy.
J Pediatr
; 227: 274-280.e2, 2020 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-32659229
6.
Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.
J Med Ethics
; 2020 Oct 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33023975
7.
Experiences and lessons learned by genetic counselors in returning secondary genetic findings to patients.
J Genet Couns
; 29(6): 1234-1244, 2020 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-32453499
8.
Newborn Screening Knowledge and Attitudes Among Midwives and Out-of-Hospital-Birth Parents.
J Perinat Neonatal Nurs
; 34(4): 357-364, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-33079810
9.
The ethics of sensor technology use in clinical research.
Nurs Outlook
; 68(6): 720-726, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32622646
10.
Secondary research uses of residual newborn screening dried bloodspots: a scoping review.
Genet Med
; 21(7): 1469-1475, 2019 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-30531811
11.
The Use of a Game-Based Decision Aid to Educate Pregnant Women about Prenatal Screening: A Randomized Controlled Study.
Am J Perinatol
; 36(3): 322-328, 2019 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-30107621
12.
Pre-implantation genetic testing: decisional factors to accept or decline among in vitro fertilization patients.
J Assist Reprod Genet
; 35(9): 1605-1612, 2018 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-30074131
13.
Experiences among Women with Positive Prenatal Expanded Carrier Screening Results.
J Genet Couns
; 26(4): 690-696, 2017 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-27796679
14.
Deliberative Discussion Focus Groups.
Qual Health Res
; 26(6): 734-40, 2016 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-26078330
15.
Perceptions of tissue storage in a dementia population among spouses and offspring.
J Genet Couns
; 24(3): 503-11, 2015 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-25641253
16.
IRB practices and policies regarding the secondary research use of biospecimens.
BMC Med Ethics
; 16: 32, 2015 May 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-25953109
17.
What parents want to know about the storage and use of residual newborn bloodspots.
Am J Med Genet A
; 164A(11): 2739-44, 2014 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-25131714
18.
Perceptions of equine-assisted activities and therapies by parents and children with spinal muscular atrophy.
Pediatr Phys Ther
; 26(2): 237-44, 2014.
Artigo
em Inglês
| MEDLINE | ID: mdl-24675128
19.
Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.
Am J Med Genet A
; 161A(4): 679-86, 2013 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-23443997
20.
Creating a postmortem examination decision aid: Suggestions from bereaved parents of a stillborn.
Patient Educ Couns
; 112: 107746, 2023 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-37060683