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1.
Pediatr Res ; 2024 Mar 22.
Artigo em Inglês | MEDLINE | ID: mdl-38519792

RESUMO

A 7-session narrative medicine (NM) curriculum was designed and facilitated by pediatrics residents for pediatrics residents in order to unpack challenging experiences during clinical training and strengthen relationships with colleagues and patients. The primary facilitator, a resident with a master's degree in NM, provided facilitator training to her co-residents with whom she co-led the workshops in the curriculum. We conducted, transcribed, and analyzed individual interviews of 15 residents, with three resultant themes: reflection on personal and professional identity; connection to others and community building; and reconceptualization of medical practice. Residents shared that they experienced greater solidarity, professional fulfillment, appreciation for multiple facets of their identities, recognition of holding space for vulnerability, and advocacy for marginalized populations. Our study highlights the feasibility and effectiveness of peer-led NM workshops to enhance clinical training through self-reflection, inclusion of persons from underrecognized backgrounds, and promotion of values consistent with humanistic care. IMPACT: A novel narrative medicine curriculum was designed and facilitated by pediatrics residents for pediatrics residents. The curriculum was feasible and acceptable to pediatrics residents and required a facilitator with content and methodology expertise in narrative medicine to train additional facilitators. Three themes emerged from resident interviews: reflection on personal and professional identity; connection to others and community building; and reconceptualization of medical practice on individual and global levels.

2.
Ann Behav Med ; 58(8): 517-526, 2024 Jul 11.
Artigo em Inglês | MEDLINE | ID: mdl-38963074

RESUMO

BACKGROUND: Gender affirmation is a process by which gender-diverse individuals are supported in their gender identity. Parents are critical in how gender-diverse youth, including Black and Latine transgender/nonbinary youth (BLTY), access various forms of gender affirmation-for example, social and medical transition. Culturally relevant supports are needed to bolster how BLTY and their parents navigate gender affirmation. PURPOSE: This study aimed to explore recommendations for aiding BLTY and parents in navigating the youth's gender journey. METHODS: Semi-structured interviews were conducted with parents of BLTY, BLTY, and BLT young adults (BLTYAs) recruited from clinics, community organizations, and social media. Interviews focused on gender affirmation and recommendations to promote BLTY's gender affirmation. Primary and secondary analysts coded transcripts using a priori and emergent codes. For this analysis, excerpts pertaining to recommended supports were analyzed to identify themes. RESULTS: Ten parents of BLTY, 10 BLTY (14-18 years), and 23 BLTYAs (18-30 years) participated. Participants provided recommendations at different socio-ecological levels. On the societal level, participants recommended improvements in media representation of racial and ethnic minority gender-diverse individuals. For organizations, participants recommended more clinicians who shared minoritized identities, clinicians knowledgeable in gender-affirming care, affordability of gender-affirming services, and school-based education regarding gender diversity. On interpersonal/individual levels, they suggested culturally informed peer support among BLTY and parents, including support groups, peer mentors, and camps with individuals who share their minoritized identities. CONCLUSIONS: Participants provided salient insights to supporting gender affirmation of BLTY, which can inform intervention development for BLTY and their families.


Black and Latine transgender/nonbinary youth (BLTY) have multiple minoritized identities as they are both racial/ethnic minorities and are gender diverse. These youth face unique challenges in being supported in their gender identity, and their parents face barriers to supporting their gender journey. Unfortunately, approaches to assisting BLTY and their parents in navigating this journey are poorly understood. We interviewed 10 BLTY, 10 related parents of the BLTY, and 23 Black and Latine transgender/nonbinary young adults (BLTYAs) recruited from clinics, community organizations, and social media. In this study, we explored their recommendations for better supporting and affirming BLTY. These recommendations targeted different areas of BLTY's lives. On a broader societal level, participants advocated media representation of gender-diverse individuals of color. For medical and mental health organizations, participants recommended more clinicians knowledgeable in supporting gender-diverse youth and more clinicians who share similar backgrounds with BLTY. For interpersonal and individual relationships, they recommended peer support groups and mentors for BLTY and parents of BLTY. These comprehensive recommendations from BLTY, parents, and BLTYAs can be implemented to better support BLTY in their gender identity through culturally based interventions in different domains.


Assuntos
Negro ou Afro-Americano , Pessoas Transgênero , Humanos , Masculino , Feminino , Pessoas Transgênero/psicologia , Adolescente , Adulto , Adulto Jovem , Hispânico ou Latino/psicologia , Pais , Identidade de Gênero , Pesquisa Qualitativa
3.
Genet Med ; 21(10): 2371-2380, 2019 10.
Artigo em Inglês | MEDLINE | ID: mdl-30930462

RESUMO

PURPOSE: Recruitment of participants from diverse backgrounds is crucial to the generalizability of genetic research, but has proven challenging. We retrospectively evaluated recruitment methods used for a study on return of genetic results. METHODS: The costs of study design, development, and participant enrollment were calculated, and the characteristics of the participants enrolled through the seven recruitment methods were examined. RESULTS: A total of 1118 participants provided consent, a blood sample, and questionnaire data. The estimated cost across recruitment methods ranged from $579 to $1666 per participant and required a large recruitment team. Recruitment methods using flyers and staff networks were the most cost-efficient and resulted in the highest completion rate. Targeted sampling that emphasized the importance of Latino/a participation, utilization of translated materials, and in-person recruitments contributed to enrolling a demographically diverse sample. CONCLUSIONS: Although all methods were deployed in the same hospital or neighborhood and shared the same staff, each recruitment method was different in terms of cost and characteristics of the enrolled participants, suggesting the importance of carefully choosing the recruitment methods based on the desired composition of the final study sample. This analysis provides information about the effectiveness and cost of different methods to recruit adults for genetic research.


Assuntos
Ensaios Clínicos como Assunto/economia , Testes Genéticos/economia , Seleção de Pacientes/ética , Adulto , Ensaios Clínicos como Assunto/métodos , Custos e Análise de Custo , Etnicidade , Feminino , Genômica/economia , Genômica/métodos , Humanos , Masculino , Programas de Rastreamento/economia , Pessoa de Meia-Idade , Projetos de Pesquisa , Estudos Retrospectivos
5.
JAMA ; 331(16): 1345-1346, 2024 04 23.
Artigo em Inglês | MEDLINE | ID: mdl-38602666

RESUMO

This Arts and Medicine feature discusses INSPIRE, a digital health game designed to foster adolescent health behavior change.


Assuntos
Saúde do Adolescente , Promoção da Saúde , Serviços de Saúde Mental Escolar , Jogos de Vídeo , Adolescente , Humanos , Promoção da Saúde/métodos , Jogos de Vídeo/psicologia
7.
SSM Ment Health ; 52024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-39007080

RESUMO

Benefits of parental gender-affirming behaviors on the mental health and well-being of the broader gender-expansive youth population have been extensively documented. However, the nature and impact of these behaviors have not been explored by centering Black and Latine transgender/non-binary youth (BLTY). This article offers a new framework called the "Parental Gender Affirmation Model." This framework conceptualizes parental gender-affirming behaviors toward BLTY through the lenses of intersectional stigma and cultural gender norms and uses the Theory of Planned Behavior and Modified Gender Affirmation Model as foundational frameworks. We analyzed qualitative data from 43 interviews with BLTY, parents of BLTY, and Black and Latine transgender/non-binary young adults from California in the United States to develop the framework. The "Parental Gender Affirmation Model" starts with behavioral antecedents and ends with impacts of these behaviors on BLTY's well-being. This framework will inform the development of critically needed, culturally-informed interventions to support parental gender affirmation of BLTY.

8.
J Adolesc Health ; 2024 Mar 20.
Artigo em Inglês | MEDLINE | ID: mdl-38506776
9.
Acad Med ; 2023 Apr 04.
Artigo em Inglês | MEDLINE | ID: mdl-37027218
10.
Pediatrics ; 149(4)2022 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-35362062
11.
J Adolesc Health ; 71(5): 646-647, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-35739005
12.
Acad Med ; 96(12): 1681, 2021 12 01.
Artigo em Inglês | MEDLINE | ID: mdl-35134027
13.
Acad Med ; 96(12): 1680, 2021 12 01.
Artigo em Inglês | MEDLINE | ID: mdl-33031116
15.
Acad Med ; 90(11): 1462-5, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25945967

RESUMO

As health humanities programs grow and thrive across the country, encouraging medical students to read, write, and become more reflective about their professional roles, educators must bring a sense of self-reflexivity to the discipline itself. In the health humanities, novels, patient histories, and pieces of reflective writing are often treated as architectural spaces or "homes" that one can enter and examine. Yet, narrative-based learning in health care settings does not always allow its participants to feel "at home"; when not taught with a critical attention to power and pedagogy, the health humanities can be unsettling and even dangerous. Educators can mitigate these risks by considering not only what they teach but also how they teach it.In this essay, the authors present three pedagogical pillars that educators can use to invite learners to engage more fully, develop critical awareness of medical narratives, and feel "at home" in the health humanities. These pedagogical pillars are narrative humility (an awareness of one's prejudices, expectations, and frames of listening), structural competency (attention to sources of power and privilege), and engaged pedagogy (the protection of students' security and well-being). Incorporating these concepts into pedagogical practices can create safe and productive classroom spaces for all, including those most vulnerable and at risk of being "unhomed" by conventional hierarchies and oppressive social structures. This model then can be translated through a parallel process from classroom to clinic, such that empowered, engaged, and cared-for learners become empowering, engaging, and caring clinicians.


Assuntos
Educação Médica/tendências , Ciências Humanas/educação , Modelos Educacionais , Ensino/métodos , Currículo , Humanos , Aprendizagem , Narração , Pensamento
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