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1.
Fam Community Health ; 47(4): 314-317, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38912691

RESUMO

BACKGROUND AND OBJECTIVES: Language-appropriate outcome measurements help to improve health equity. The purpose of this study was to translate and validate the Cohen-Hoberman Inventory of Physical Symptoms (CHIPS) in Nepali for Bhutanese refugee utilization. METHODS: English-Nepali forward and back translations of CHIPS were completed by an official translator and evaluated by three content experts. A scaled rubric measured the following constructs: neurogenic stress response (NSR), somatic stress response (SSR), and visceral stress response (VSR). Data were analyzed using SPSS 26.0. RESULTS: The Nepali version of CHIPS reported good content validity, strong internal consistency (Cronbach's α  = .94), and inter-rater reliability (ICC = 0.91). Kappa statistic reported 88% to 96% agreement. Constructs of NSR (0.91), SSR (0.94), and VSR (0.94) reported strong internal consistency. CONCLUSIONS: The Nepali translated version of CHIPS showed strong validity and reliability for utilization in the Bhutanese refugee population and improves health access to outcome measurements for a vulnerable population.


Assuntos
Refugiados , Humanos , Refugiados/psicologia , Refugiados/estatística & dados numéricos , Butão/etnologia , Nepal , Reprodutibilidade dos Testes , Masculino , Feminino , Adulto , Inquéritos e Questionários , Psicometria , Tradução , Pessoa de Meia-Idade , Traduções
2.
Ethics Hum Res ; 46(4): 2-16, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38944882

RESUMO

This article examines the ethics of research design and the initiation of a study (e.g., recruitment of participants) involving refugee participants. We aim to equip investigators and members of IRBs with a set of ethical considerations and pragmatic recommendations to address challenges in refugee-focused research as it is developed and prepared for IRB review. We discuss challenges including how refugees are being defined and identified; their vulnerabilities before, during, and following resettlement that impacts their research participation; recruitment; consent practices including assent and unaccompanied minors; and conflicts of interest. Ethical guidance and regulatory oversight provided by international bodies, federal governments, and IRBs are important for enforcing the protection of participants. We describe the need for additional ethical guidance and awareness, if not special protections for refugee populations as guided by the National Institutes of Health (NIH) Guiding Principles for Ethical Research.


Assuntos
Comitês de Ética em Pesquisa , Ética em Pesquisa , Consentimento Livre e Esclarecido , National Institutes of Health (U.S.) , Refugiados , Humanos , Estados Unidos , Consentimento Livre e Esclarecido/ética , América do Norte , Conflito de Interesses , Projetos de Pesquisa , Seleção de Pacientes/ética , Pesquisa Biomédica/ética , Menores de Idade , Guias como Assunto , Populações Vulneráveis
3.
J Immigr Minor Health ; 23(1): 184-189, 2021 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-33067740

RESUMO

Recently resettled refugee populations may be at greater risk for exposure to severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), a virus that causes coronavirus 2019 (COVID-19), and face unique challenges in following recommendations to protect their health. Several factors place resettled refugees at elevated risk for exposure to persons with COVID-19 or increased severity of COVID-19: being more likely to experience poverty and live in crowded housing, being employed in less protected, service-sector jobs, experiencing language and health care access barriers, and having higher rates of co-morbidities. In preparing for and managing COVID-19, resettled refugees encounter similar barriers to those of other racial or ethnic minority populations, which may then be exacerbated by unique barriers experienced from being a refugee. Key recommendations for resettlement and healthcare providers include analyzing sociodemographic data about refugee patients, documenting and resolving barriers faced by refugees, developing refugee-specific outreach plans, using culturally and linguistically appropriate resources, ensuring medical interpretation availability, and leveraging virtual platforms along with nontraditional community partners to disseminate COVID-19 messaging.


Assuntos
COVID-19/epidemiologia , Refugiados , COVID-19/prevenção & controle , Canadá/epidemiologia , Aglomeração , Emigração e Imigração , Acessibilidade aos Serviços de Saúde , Humanos , Fatores de Risco , Estados Unidos/epidemiologia
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