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Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.
Genetti, Casie A; Schwartz, Talia S; Robinson, Jill O; VanNoy, Grace E; Petersen, Devan; Pereira, Stacey; Fayer, Shawn; Peoples, Hayley A; Agrawal, Pankaj B; Betting, Wendi N; Holm, Ingrid A; McGuire, Amy L; Waisbren, Susan E; Yu, Timothy W; Green, Robert C; Beggs, Alan H; Parad, Richard B.
Affiliation
  • Genetti CA; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Schwartz TS; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • VanNoy GE; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Petersen D; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Pereira S; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Fayer S; Department of Medicine, Division of Genetics, Brigham and Women's Hospital, Boston, Massachusetts, USA.
  • Peoples HA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Agrawal PB; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Betting WN; Harvard Medical School, Boston, Massachusetts, USA.
  • Holm IA; Division of Newborn Medicine, Boston Children's Hospital, Boston, Massachusetts, USA.
  • McGuire AL; Department of Medicine, Division of Genetics, Brigham and Women's Hospital, Boston, Massachusetts, USA.
  • Waisbren SE; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Yu TW; Harvard Medical School, Boston, Massachusetts, USA.
  • Green RC; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Beggs AH; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Parad RB; Harvard Medical School, Boston, Massachusetts, USA.
Genet Med ; 21(3): 622-630, 2019 03.
Article in En | MEDLINE | ID: mdl-30209271
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Neonatal Screening Type of study: Clinical_trials / Prognostic_studies Limits: Adult / Female / Humans / Male / Newborn Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2019 Type: Article Affiliation country: United States
Fulltext
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Neonatal Screening Type of study: Clinical_trials / Prognostic_studies Limits: Adult / Female / Humans / Male / Newborn Language: En Journal: Genet Med Journal subject: GENETICA MEDICA Year: 2019 Type: Article Affiliation country: United States