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Features of Marfan syndrome not listed in the Ghent nosology - the dark side of the disease.
von Kodolitsch, Yskert; Demolder, Anthony; Girdauskas, Evaldas; Kaemmerer, Harald; Kornhuber, Katharina; Muino Mosquera, Laura; Morris, Shaine; Neptune, Enid; Pyeritz, Reed; Rand-Hendriksen, Svend; Rahman, Alexander; Riise, Nina; Robert, Leema; Staufenbiel, Ingmar; Szöcs, Katalin; Vanem, Thy Thy; Linke, Stephan J; Vogler, Marina; Yetman, Anji; De Backer, Julie.
Affiliation
  • von Kodolitsch Y; German Aorta Center Hamburg at University Hospital Hamburg Eppendorf University Heart Centre, Clinics for Cardiology and Heart Surgery, VASCERN HTAD European Reference Centre.
  • Demolder A; Center for Medical Genetics and Department of Cardiology, Ghent University Hospital, VASCERN HTAD European Reference Centre, Ghent, Belgium.
  • Girdauskas E; German Aorta Center Hamburg at University Hospital Hamburg Eppendorf University Heart Centre, Clinics for Cardiology and Heart Surgery, VASCERN HTAD European Reference Centre.
  • Kaemmerer H; Department of Pediatric Cardiology and Congenital Heart Disease, German Heart Centre Munich of the Free State of Bavaria, Munich.
  • Kornhuber K; Department of Pediatric Cardiology and Congenital Heart Disease, German Heart Centre Munich of the Free State of Bavaria, Munich.
  • Muino Mosquera L; Department of Pediatric Cardiology and Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium.
  • Morris S; Department of Pediatrics-Cardiology, Texas Children's Hospital/Baylor College of Medicine, Houston, TX, USA.
  • Neptune E; Division of Pulmonary and Critical Care Medicine and Institute of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Pyeritz R; Departments of Medicine and Genetics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
  • Rand-Hendriksen S; TRS, National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
  • Rahman A; Department of Conservative Dentistry, Periodontology and Preventive Dentistry, Hannover Medical School, Hannover.
  • Riise N; TRS, National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
  • Robert L; Department of Clinical Genetics, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Staufenbiel I; Department of Conservative Dentistry, Periodontology and Preventive Dentistry, Hannover Medical School, Hannover.
  • Szöcs K; German Aorta Center Hamburg at University Hospital Hamburg Eppendorf University Heart Centre, Clinics for Cardiology and Heart Surgery, VASCERN HTAD European Reference Centre.
  • Vanem TT; TRS, National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
  • Linke SJ; Department of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.
  • Vogler M; Clinic of Ophthalmology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Yetman A; Ophthalmological practice at the University Clinic Hamburg-Eppendorf, zentrumsehstärke, Hamburg, Germany.
  • De Backer J; German Marfan Association, Marfan Hilfe Deutschland e.V, Eutin, Germany.
Expert Rev Cardiovasc Ther ; 17(12): 883-915, 2019 Dec.
Article in En | MEDLINE | ID: mdl-31829751

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Cardiovascular Diseases / Marfan Syndrome Type of study: Guideline Limits: Humans Language: En Journal: Expert Rev Cardiovasc Ther Journal subject: ANGIOLOGIA / CARDIOLOGIA / TERAPEUTICA Year: 2019 Type: Article

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Cardiovascular Diseases / Marfan Syndrome Type of study: Guideline Limits: Humans Language: En Journal: Expert Rev Cardiovasc Ther Journal subject: ANGIOLOGIA / CARDIOLOGIA / TERAPEUTICA Year: 2019 Type: Article