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Patient engagement in the design of clinical research in Noonan syndrome spectrum disorders: a scoping review.
Tiemens, Dagmar K; Nugteren, Jacqueline; Leenders, Erika; Wingbermühle, Ellen; Pittens, Carina A C M; Draaisma, Jos M Th.
Affiliation
  • Tiemens DK; Department of Pediatrics, Amalia Children's Hospital, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Nugteren J; Dutch Noonan Syndrome Foundation, Nijkerk, The Netherlands.
  • Leenders E; Department of Pediatrics, Amalia Children's Hospital, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Wingbermühle E; Department of Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Pittens CACM; Department of Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Draaisma JMT; Centre of Excellence for Neuropsychiatry, Vincent Van Gogh Institute for Psychiatry, Venray, The Netherlands.
Orphanet J Rare Dis ; 16(1): 449, 2021 10 26.
Article in En | MEDLINE | ID: mdl-34702330
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Noonan Syndrome Type of study: Systematic_reviews Limits: Adult / Child / Humans Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Netherlands
Fulltext
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XML
PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Noonan Syndrome Type of study: Systematic_reviews Limits: Adult / Child / Humans Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2021 Type: Article Affiliation country: Netherlands