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Accuracy of congenital anomaly coding in live birth children recorded in European health care databases, a EUROlinkCAT study.
Bakker, Marian K; Loane, Maria; Garne, Ester; Ballardini, Elisa; Cavero-Carbonell, Clara; García, Laura; Gissler, Mika; Given, Joanne; Heino, Anna; Jamry-Dziurla, Anna; Jordan, Sue; Urhoj, Stine Kjaer; Latos-Bielenska, Anna; Limb, Elisabeth; Lutke, Renee; Neville, Amanda J; Pierini, Anna; Santoro, Michele; Scanlon, Ieuan; Tan, Joachim; Wellesley, Diana; de Walle, Hermien E K; Morris, Joan K.
Affiliation
  • Bakker MK; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. m.k.bakker@umcg.nl.
  • Loane M; Institute for Nursing and Health Research, Ulster University, Northern Ireland, Newtownabbey, UK.
  • Garne E; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.
  • Ballardini E; Neonatal Intensive Care Unit, Paediatric Section, IMER Registry (Emilia Romagna Registry of Birth Defects), Department of Medical Sciences, University of Ferrara, Ferrara, Italy.
  • Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • García L; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Gissler M; Finnish Institute for Health and Welfare (THL), Helsinki, Finland.
  • Given J; Institute for Nursing and Health Research, Ulster University, Northern Ireland, Newtownabbey, UK.
  • Heino A; Finnish Institute for Health and Welfare (THL), Helsinki, Finland.
  • Jamry-Dziurla A; Polish Registry of Congenital Malformations, Chair and Department of Medical Genetics, University of Medical Sciences, Poznan, Poland.
  • Jordan S; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, UK.
  • Urhoj SK; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.
  • Latos-Bielenska A; Section of Epidemiology, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
  • Limb E; Polish Registry of Congenital Malformations, Chair and Department of Medical Genetics, University of Medical Sciences, Poznan, Poland.
  • Lutke R; Population Health Research Institute, St George's University of London, London, UK.
  • Neville AJ; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Pierini A; IMER Registry, Centre for Epidemiology and Clinical Research, University of Ferrara and Azienda, Ospedaliero Universitario Di Ferrara, Ferrara, Italy.
  • Santoro M; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy.
  • Scanlon I; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy.
  • Tan J; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, UK.
  • Wellesley D; Population Health Research Institute, St George's University of London, London, UK.
  • de Walle HEK; University of Southampton and Wessex Clinical Genetics Service, Princess Anne Hospital, Southampton, SO16 5YA, UK.
  • Morris JK; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
Eur J Epidemiol ; 38(3): 325-334, 2023 Mar.
Article in En | MEDLINE | ID: mdl-36807730
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Congenital Abnormalities / Cleft Lip / Cleft Palate Type of study: Prognostic_studies / Systematic_reviews Limits: Child / Female / Humans / Pregnancy Language: En Journal: Eur J Epidemiol Journal subject: EPIDEMIOLOGIA Year: 2023 Type: Article Affiliation country: Netherlands
Fulltext
Print
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Congenital Abnormalities / Cleft Lip / Cleft Palate Type of study: Prognostic_studies / Systematic_reviews Limits: Child / Female / Humans / Pregnancy Language: En Journal: Eur J Epidemiol Journal subject: EPIDEMIOLOGIA Year: 2023 Type: Article Affiliation country: Netherlands