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Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study.
Brands, Martijn R; Janssen, Ebony A M; Cnossen, Marjon H; Smit, Cees; van Vulpen, Lize F D; van der Valk, Paul R; Eikenboom, Jeroen; Heubel-Moenen, Floor C J I; Hooimeijer, Louise; Ypma, Paula; Nieuwenhuizen, Laurens; Coppens, Michiel; Schols, Saskia E M; Laros-van Gorkom, Britta A P; Leebeek, Frank W G; Driessens, Mariëtte H E; Rosendaal, Frits R; van der Bom, Johanna G; Fijnvandraat, Karin; Gouw, Samantha C.
Affiliation
  • Brands MR; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, the Netherlands.
  • Janssen EAM; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, the Netherlands.
  • Cnossen MH; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, the Netherlands.
  • Smit C; Department of Pediatric Hematology, Erasmus MC Sophia Children's Hospital, Erasmus University Medical Center Rotterdam, Rotterdam, the Netherlands.
  • van Vulpen LFD; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands.
  • van der Valk PR; Center for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Eikenboom J; Center for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.
  • Heubel-Moenen FCJI; Department of Internal Medicine, Division of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands.
  • Hooimeijer L; Department of Hematology, Maastricht University Medical Centre, Maastricht, the Netherlands.
  • Ypma P; Department of Pediatrics, University Medical Center Groningen, Groningen, the Netherlands.
  • Nieuwenhuizen L; Department of Hematology, HagaZiekenhuis, The Hague, the Netherlands.
  • Coppens M; Department of Internal Medicine, Maxima Medical Centre, Eindhoven, the Netherlands.
  • Schols SEM; Department of Vascular Medicine, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
  • Laros-van Gorkom BAP; Amsterdam Cardiovascular Sciences, Pulmonary Hypertension & Thrombosis, Amsterdam, The Netherlands.
  • Leebeek FWG; Department of Hematology, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Driessens MHE; Hemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Nijmegen, the Netherlands.
  • Rosendaal FR; Department of Hematology, Radboud University Medical Center, Nijmegen, the Netherlands.
  • van der Bom JG; Hemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Nijmegen, the Netherlands.
  • Fijnvandraat K; Department of Hematology, Erasmus MC, Erasmus University Medical Center Rotterdam, Rotterdam, the Netherlands.
  • Gouw SC; Netherlands Hemophilia Patient Society (NVHP), Nijkerk, the Netherlands.
Haemophilia ; 29(5): 1191-1201, 2023 Sep.
Article in En | MEDLINE | ID: mdl-37602825
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Transition to Adult Care / Hemophilia A Type of study: Prognostic_studies Limits: Adolescent / Adult / Child / Humans Country/Region as subject: Europa Language: En Journal: Haemophilia Journal subject: HEMATOLOGIA Year: 2023 Type: Article Affiliation country: Netherlands
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Transition to Adult Care / Hemophilia A Type of study: Prognostic_studies Limits: Adolescent / Adult / Child / Humans Country/Region as subject: Europa Language: En Journal: Haemophilia Journal subject: HEMATOLOGIA Year: 2023 Type: Article Affiliation country: Netherlands