Usefulness of a centralized system of data collection for the development of an international multicentre registry of spondyloarthritis.
Rheumatology (Oxford)
; 50(1): 132-6, 2011 Jan.
Article
en En
| MEDLINE
| ID: mdl-20823095
ABSTRACT
OBJECTIVE:
To present the usefulness of a centralized system of data collection for the development of an international multicentre registry of SpA.METHOD:
The originality of this registry consists in the creation of a virtual network of researchers in a computerized Internet database. From its conception, the registry was meant to be a dynamic acquiring system.RESULTS:
REGISPONSER has two developing phases (Conception and Universalization) and gathers several evolving secondary projects (REGISPONSER-EARLY, REGISPONSER-AS, ESPERANZA and RESPONDIA). Each sub-project answered the necessity of having more specific and complete data of the patients even from the onset of the disease so, in the end, obtaining a well-defined picture of SpAs spectrum in the Spanish population.CONCLUSION:
REGISPONSER is the first dynamic SpA database composed of cohorts with a significant number of patients distributed by specific diagnosis, which provides basic specific information of the sub-cohorts useful for patients' evaluation in rheumatology ambulatory consulting.
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Sistema de Registros
/
Bases de Datos Factuales
/
Sistemas de Registros Médicos Computarizados
/
Espondiloartritis
Límite:
Humans
País/Región como asunto:
Europa
Idioma:
En
Revista:
Rheumatology (Oxford)
Asunto de la revista:
REUMATOLOGIA
Año:
2011
Tipo del documento:
Article
País de afiliación:
España