[The German network for systemic sclerosis (DNSS): current data on diagnostics and therapy]. / Das Deutsche Netzwerk für Systemische Sklerodermie (DNSS): Aktuelle Daten zu Diagnostik und Therapie.
Hautarzt
; 63 Suppl 1: 71-5, 2012 Apr.
Article
en De
| MEDLINE
| ID: mdl-22543950
ABSTRACT
An essential prerequisite for progress in understanding the pathophysiology and the clinical treatment of rare diseases is the national cooperation of specialized centers. The German network for systemic sclerosis (DNSS) is such an interdisciplinary union of hospitals and research centers with a special interest in systemic sclerosis (SSc). A core activity is the patient register of the DNSS which includes over 3,100 patients. It is one of largest national registers of SSc patients worldwide and comprises prospective data on diagnostics as well as primarily therapy of the patients. The register has now proven to be an extremely successful basis for clinical research and basic studies within the framework of international cooperation. The most important results of the cooperation and the register will be presented in this article.
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Esclerodermia Sistémica
/
Sistema de Registros
/
Redes Comunitarias
/
Difusión de la Información
Tipo de estudio:
Diagnostic_studies
Límite:
Female
/
Humans
/
Male
País/Región como asunto:
Europa
Idioma:
De
Revista:
Hautarzt
Año:
2012
Tipo del documento:
Article