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Managing Haemophilia for Life: 5th Haemophilia Global Summit.
Hermans, Cedric; Dolan, Gerry; Jennings, Ian; Windyga, Jerzy; Lobet, Sébastien; Rodríguez-Merchán, E Carlos; Di Minno, Matteo Nicola Dario; Jiménez-Yuste, Víctor; O'Mahony, Brian.
Afiliación
  • Hermans C; Catholic University of Louvain, Brussels, Belgium.
  • Dolan G; St Thomas' Hospital, London, UK.
  • Jennings I; UK National External Quality Assessment Service, Sheffield, UK.
  • Windyga J; Institute of Haematology and Transfusion Medicine, Warsaw, Poland.
  • Lobet S; Cliniques Universitaires Saint-Luc, Brussels, Belgium.
  • Rodríguez-Merchán EC; La Paz University Hospital, Madrid, Spain.
  • Di Minno MN; University of Naples Federico II, Naples, Italy.
  • Jiménez-Yuste V; La Paz University Hospital, Madrid, Spain.
  • O'Mahony B; Irish Haemophilia Society, Dublin, Ireland.
Eur J Haematol ; 95 Suppl 78: 1-25, 2015 Oct.
Article en En | MEDLINE | ID: mdl-26350039
The 5th Haemophilia Global Summit was held in Barcelona, Spain, in September 2014. The programme was designed by an independent Scientific Steering Committee of haemophilia experts and explored issues relevant to the practical management of haemophilia, as well as key opportunities and challenges for care in the future. The topics outlined in this supplement were selected by the Scientific Steering Committee for their relevance to improving haemophilia care globally. In this supplement from the meeting, Gerry Dolan explores pharmacokinetics and dynamics in haemophilia, and Gerry Dolan and Ian Jennings jointly address the role of the laboratory in haemophilia care. The potential benefits of low-dose prophylaxis regimens for people with haemophilia in the developing world are reviewed by Jerzy Windyga, and the question of whether 'Future haemophilia research should be undertaken in the developing world' is debated by Jerzy Windyga and Cedric Hermans. Management strategies for ankle arthropathy are discussed by Sébastien Lobet and E. Carlos Rodríguez-Merchán, and the use of ultrasound for the early detection of haemophilic arthropathy is addressed by Matteo Nicola Dario Di Minno and Víctor Jiménez-Yuste. Finally, the role of patients in the future of haemophilia care is reviewed by Brian O'Mahony.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Factor IX / Factor VIII / Manejo de la Enfermedad / Hemartrosis / Hemofilia A Tipo de estudio: Diagnostic_studies / Screening_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Haematol Asunto de la revista: HEMATOLOGIA Año: 2015 Tipo del documento: Article País de afiliación: Bélgica

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Factor IX / Factor VIII / Manejo de la Enfermedad / Hemartrosis / Hemofilia A Tipo de estudio: Diagnostic_studies / Screening_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Eur J Haematol Asunto de la revista: HEMATOLOGIA Año: 2015 Tipo del documento: Article País de afiliación: Bélgica