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The who, what, and why of research participants' intentions to request a broad range of secondary findings in a diagnostic genomic sequencing study.
Rini, Christine; Khan, Cynthia M; Moore, Elizabeth; Roche, Myra I; Evans, James P; Berg, Jonathan S; Powell, Bradford C; Corbie-Smith, Giselle; Foreman, Ann Katherine M; Griesemer, Ida; Lee, Kristy; O'Daniel, Julianne M; Henderson, Gail E.
Afiliación
  • Rini C; John Theuer Cancer Center, Hackensack University Medical Center, Hackensack, New Jersey, USA. christine.rini@hackensackmeridian.org.
  • Khan CM; Econometrica, Inc., Bethesda, Maryland, USA.
  • Moore E; Blue Cross and Blue Shield of North Carolina, Durham, North Carolina, USA.
  • Roche MI; Center for Genomics and Society, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Evans JP; Department of Pediatrics, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Berg JS; Department of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Powell BC; Center for Genomics and Society, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Corbie-Smith G; Department of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Foreman AKM; Department of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Griesemer I; Center for Genomics and Society, University of North Carolina, Chapel Hill, North Carolina, USA.
  • Lee K; Department of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • O'Daniel JM; Department of Genetics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
  • Henderson GE; Department of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Genet Med ; 20(7): 760-769, 2018 07.
Article en En | MEDLINE | ID: mdl-29261173
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Participación del Paciente / Conocimientos, Actitudes y Práctica en Salud / Hallazgos Incidentales Tipo de estudio: Diagnostic_studies Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Participación del Paciente / Conocimientos, Actitudes y Práctica en Salud / Hallazgos Incidentales Tipo de estudio: Diagnostic_studies Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2018 Tipo del documento: Article País de afiliación: Estados Unidos