Normative and conceptual ELSI research: what it is, and why it's important.

Parker, Lisa S; Sankar, Pamela L; Boyer, Joy; Jean McEwen, J D; Kaufman, David

Parker, Lisa S; Sankar, Pamela L; Boyer, Joy; Jean McEwen, J D; Kaufman, David.

Afiliación

Parker LS; Center for Bioethics & Health Law, University of Pittsburgh, 519 Barco Law Building, 3900 Forbes Ave, Pittsburgh, Pennsylvania, 15260, USA. lisap@pitt.edu.
Sankar PL; Medical Ethics and Health Policy, University of Pennsylvania, Philadelphia, Pennsylvania, 19104, USA.
Boyer J; NHGRI ELSI Program Director, National Institutes of Health, Building 31, Room 4B09 31 Center Drive, MSC 2152, 9000, Bethesda, Maryland, 20892-2152, USA.
Jean McEwen JD; NHGRI ELSI Program Director, National Institutes of Health, Building 31, Room 4B09 31 Center Drive, MSC 2152, 9000, Bethesda, Maryland, 20892-2152, USA.
Kaufman D; NHGRI ELSI Program Director, National Institutes of Health, Building 31, Room 4B09 31 Center Drive, MSC 2152, 9000, Bethesda, Maryland, 20892-2152, USA.

Genet Med ; 21(2): 505-509, 2019 02.

Article en En | MEDLINE | ID: mdl-29970926

Asunto(s)

Ética en Investigación; Genoma Humano/genética; Genómica/ética; National Human Genome Research Institute (U.S.)/ética; Humanos; National Human Genome Research Institute (U.S.)/legislación & jurisprudencia; Política Pública/legislación & jurisprudencia; Estados Unidos

Palabras clave

ELSI research; incidental findings; normative issues; research methods; values and meaning

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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Genoma Humano / Genómica / Ética en Investigación / National Human Genome Research Institute (U.S.) Tipo de estudio: Prognostic_studies Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: Genet Med Asunto de la revista: GENETICA MEDICA Año: 2019 Tipo del documento: Article País de afiliación: Estados Unidos

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