Special Education Supports and Services for Rett Syndrome: Parent Perceptions and Satisfaction.
Intellect Dev Disabil
; 58(1): 49-64, 2020 02.
Article
en En
| MEDLINE
| ID: mdl-32011225
ABSTRACT
There are no published studies describing educational experiences for girls with Rett syndrome. Given the extensive educational needs associated with Rett syndrome, it is important to understand how families perceive their daughters' educational experiences to inform education service provision. The purpose of this study was to survey parents of school-aged children with Rett syndrome to describe the educational services that they receive and understand parents' perceptions of and satisfaction with the special educational and related services. The majority of parents were satisfied with their daughters' educational services. Communication was the most frequently endorsed priority skill area, and many parents expressed frustration with limited access to augmentative and alternative communication (AAC) devices and staff training in their use. These results suggest there is a need for high-quality speech therapy and an emphasis on AAC support.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Padres
/
Satisfacción Personal
/
Síndrome de Rett
/
Educación de las Personas con Discapacidad Intelectual
Tipo de estudio:
Qualitative_research
Límite:
Adolescent
/
Child
/
Child, preschool
/
Female
/
Humans
Idioma:
En
Revista:
Intellect Dev Disabil
Asunto de la revista:
TRANSTORNOS MENTAIS
Año:
2020
Tipo del documento:
Article