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Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families.
Cheung, Johnny T K; Au, Doreen; Ip, Anthony H F; Chan, Jenny; Ng, Kenway; Cheung, Lok; Yuen, Jacqueline; Hui, Elsie; Lee, Jenny; Lo, Raymond; Woo, Jean.
Afiliación
  • Cheung JTK; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China. johnnycheung.cuhk@gmail.com.
  • Au D; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Ip AHF; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Chan J; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Ng K; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Cheung L; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Yuen J; Institute of Ageing, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Hui E; Department of Medicine & Therapeutics, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong SAR, China.
  • Lee J; Department of Medicine & Geriatrics, Shatin Hospital, Hong Kong SAR, China.
  • Lo R; Department of Medicine & Geriatrics, Tai Po Hospital, Hong Kong SAR, China.
  • Woo J; Department of Medicine & Therapeutics, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong SAR, China.
BMC Palliat Care ; 19(1): 80, 2020 Jun 08.
Article en En | MEDLINE | ID: mdl-32513166
ABSTRACT

BACKGROUND:

Advance care planning (ACP) facilitates identification and documentation of patients' treatment preferences. Its goal aligns with that of palliative care - optimizing quality of life of seriously ill patients. However, concepts of ACP and palliative care remain poorly recognized in Chinese population. This study aims at exploring barriers to ACP from perspective of seriously ill patients and their family caregivers.

METHODS:

This is a qualitative study conducted in a Palliative Day Care Centre of Hong Kong between October 2016 and July 2017. We carried out focus groups and individual interviews for the seriously ill patients and their family caregivers. A semi-structured interview guide was used to explore participants' experiences and attitudes about ACP. Qualitative content analysis was adopted to analyze both manifest content and latent content.

RESULTS:

A total of 17 patients and 13 family caregivers participated in our study. The qualitative analysis identified four barriers to ACP 1) limited patients' participation in autonomous decision making, 2) cognitive and emotional barriers to discussion, 3) lack of readiness and awareness of early discussion, and 4) unprepared healthcare professionals and healthcare system.

CONCLUSIONS:

Participations of seriously ill patients, family caregivers and healthcare workers in ACP initiation are lacking respectively. A series of interventions are necessary to resolve the barriers.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Planificación Anticipada de Atención / Pueblo Asiatico Tipo de estudio: Prognostic_studies / Qualitative_research Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Asia Idioma: En Revista: BMC Palliat Care Año: 2020 Tipo del documento: Article País de afiliación: China

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Planificación Anticipada de Atención / Pueblo Asiatico Tipo de estudio: Prognostic_studies / Qualitative_research Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Asia Idioma: En Revista: BMC Palliat Care Año: 2020 Tipo del documento: Article País de afiliación: China