Feasibility of Systems Support Mapping to guide patient-driven health self-management in colorectal cancer survivors.
Psychol Health
; 38(5): 602-622, 2023 05.
Article
en En
| MEDLINE
| ID: mdl-34570677
ABSTRACT
OBJECTIVE:
To evaluate feasibility of System Support Mapping (MAP), a systems thinking activity that involves creating a diagram of existing self-management activities (e.g. symptom management, health behaviors) to facilitate autonomous engagement in optimal self-management.DESIGN:
One-arm pilot study of MAP in colorectal cancer survivors (NCT03520283). MAIN OUTCOMEMEASURES:
Feasibility of recruitment and retention (primary outcome), acceptability, and outcome variability over time.RESULTS:
We enrolled 24 of 66 cancer survivors approached (36%) and 20 completed follow-up (83%). Key reasons for declining participation included not interested (n = 18), did not perceive a need (n = 9), and emotional distress/overwhelmed (n = 7). Most participants reported that MAP was acceptable (e.g. 80% liked MAP quite a bit/very much). Exploratory analyses revealed a -4.68 point reduction in fatigue from before to 2 weeks after MAP exceeding a minimally important difference (d = -0.68). There were also improvements in patient autonomy (d = 0.63), self-efficacy (for managing symptoms d = 0.56, for managing chronic disease d = 0.44), psychological stress (d = -0.45), anxiety (d = -0.34), sleep disturbance (d = -0.29) and pain (d = -0.32). Qualitative feedback enhanced interpretation of results.CONCLUSIONS:
MAP feasibility in colorectal cancer survivors was mixed, predominantly because many patients did not perceive a need for this approach. MAP was acceptable among participants and showed promise for improving health outcomes.Palabras clave
Texto completo:
1
Colección:
01-internacional
Banco de datos:
MEDLINE
Asunto principal:
Neoplasias Colorrectales
/
Supervivientes de Cáncer
/
Automanejo
Tipo de estudio:
Qualitative_research
Límite:
Humans
Idioma:
En
Revista:
Psychol Health
Asunto de la revista:
PSICOLOGIA
Año:
2023
Tipo del documento:
Article
País de afiliación:
Estados Unidos