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Epidemiology of rare diseases in Brazil: protocol of the Brazilian Rare Diseases Network (RARAS-BRDN).
Félix, Têmis Maria; de Oliveira, Bibiana Mello; Artifon, Milena; Carvalho, Isabelle; Bernardi, Filipe Andrade; Schwartz, Ida V D; Saute, Jonas A; Ferraz, Victor E F; Acosta, Angelina X; Sorte, Ney Boa; Alves, Domingos.
Afiliación
  • Félix TM; Medical Genetics Service, Porto Alegre Clinical Hospital, Ramiro Barcelos St., 2350, Porto Alegre, RS, 90035-903, Brazil. tfelix@hcpa.edu.br.
  • de Oliveira BM; Medical Genetics Service, Porto Alegre Clinical Hospital, Ramiro Barcelos St., 2350, Porto Alegre, RS, 90035-903, Brazil.
  • Artifon M; Federal University of Rio Grande do Sul, Porto Alegre, Brazil.
  • Carvalho I; Medical Genetics Service, Porto Alegre Clinical Hospital, Ramiro Barcelos St., 2350, Porto Alegre, RS, 90035-903, Brazil.
  • Bernardi FA; Department of Social Medicine, Ribeirão Preto Faculty of Medicine, University of São Paulo, São Paulo, Brazil.
  • Schwartz IVD; Department of Social Medicine, Ribeirão Preto Faculty of Medicine, University of São Paulo, São Paulo, Brazil.
  • Saute JA; Medical Genetics Service, Porto Alegre Clinical Hospital, Ramiro Barcelos St., 2350, Porto Alegre, RS, 90035-903, Brazil.
  • Ferraz VEF; Federal University of Rio Grande do Sul, Porto Alegre, Brazil.
  • Acosta AX; Medical Genetics Service, Porto Alegre Clinical Hospital, Ramiro Barcelos St., 2350, Porto Alegre, RS, 90035-903, Brazil.
  • Sorte NB; Federal University of Rio Grande do Sul, Porto Alegre, Brazil.
  • Alves D; Department of Genetics, Ribeirão Preto Faculty of Medicine, University of São Paulo, São Paulo, Brazil.
Orphanet J Rare Dis ; 17(1): 84, 2022 02 24.
Article en En | MEDLINE | ID: mdl-35209917
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Enfermedades Raras Tipo de estudio: Guideline / Observational_studies / Risk_factors_studies / Screening_studies Límite: Humans / Newborn País/Región como asunto: America do sul / Brasil Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article País de afiliación: Brasil
Texto completo
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Enfermedades Raras Tipo de estudio: Guideline / Observational_studies / Risk_factors_studies / Screening_studies Límite: Humans / Newborn País/Región como asunto: America do sul / Brasil Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article País de afiliación: Brasil