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The trouble with normalisation: Transformations to hepatitis C health care and stigma in an era of viral elimination.
Kagan, Dion; Seear, Kate; Lenton, Emily; Farrugia, Adrian; Valentine, Kylie; Mulcahy, Sean; Fraser, Suzanne.
Afiliación
  • Kagan D; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
  • Seear K; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
  • Lenton E; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
  • Farrugia A; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
  • Valentine K; Social Policy Research Centre, University of New South Wales, Sydney, New South Wales, Australia.
  • Mulcahy S; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
  • Fraser S; Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
Sociol Health Illn ; 45(7): 1421-1440, 2023 09.
Article en En | MEDLINE | ID: mdl-37002705
Modern health-care systems have customarily approached hepatitis C in ways that resemble the public health approach to HIV/AIDS known as 'HIV exceptionalism'. HIV exceptionalism describes the unusual emphasis on privacy, confidentiality and consent in approaches to HIV and was partly developed to address HIV/AIDS-related stigma. In the case of hepatitis C, exceptionalist approaches have included diagnosis and treatment by specialist physicians and other 'boutique' public health strategies. The recent availability of highly effective, direct-acting antivirals alongside goals to eliminate hepatitis C have heralded dramatic changes to hepatitis C health care, including calls for its 'normalisation'. The corollary to exceptionalism, normalisation aims to bring hepatitis C into routine, mainstream health care. This article draws on interviews with stakeholders (n = 30) who work with hepatitis C-affected communities in policy, community, legal and advocacy settings in Australia, alongside Fraser et al.'s (2017, International Journal of Drug Policy, 44, 192-201) theorisation of stigma, and Rosenbrock et al.'s (1999, The AIDS policy cycle in Western Europe: from exceptionalism to normalisation. WZB Discussion Paper, No. P 99-202) critique of normalisation to consider the perceived effects of hepatitis C normalisation. Stakeholders described normalisation as a stigma-reducing process. However, they also expressed concerns about the ongoing stigma and discrimination that is not ameliorated by normalisation. We suggest that in centring normalisation, changes in health care may exaggerate the power of technological solutions to transform the meanings of hepatitis C.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Infecciones por VIH / Síndrome de Inmunodeficiencia Adquirida / Hepatitis C / Hepatitis C Crónica Tipo de estudio: Diagnostic_studies Límite: Humans Idioma: En Revista: Sociol Health Illn Año: 2023 Tipo del documento: Article País de afiliación: Australia

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Infecciones por VIH / Síndrome de Inmunodeficiencia Adquirida / Hepatitis C / Hepatitis C Crónica Tipo de estudio: Diagnostic_studies Límite: Humans Idioma: En Revista: Sociol Health Illn Año: 2023 Tipo del documento: Article País de afiliación: Australia