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Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO.
Audo, Isabelle; Patalano, Francesco; Naujoks, Christel; Spera, Claudio; Fischer, M Dominik; Green, Jane; Kay, Christine; Durham, Todd; Williamson, Nicola; Bradley, Helena; Barclay, Melissa; Boparai, Kieran; Banhazi, Judit.
Afiliación
  • Audo I; Sorbonne Université, INSERM, CNRS, Institut de La Vision, CHNO Des Quinze-Vingts, National Rare Disease Center REFERET and INSERM-DGOS CIC 1423, 75012, Paris, France.
  • Patalano F; Novartis Pharma AG, Basel, Switzerland.
  • Naujoks C; Novartis Pharma AG, Basel, Switzerland.
  • Spera C; Novartis Pharma AG, Basel, Switzerland.
  • Fischer MD; Department of Clinical Neurosciences, University of Oxford, Oxford, UK.
  • Green J; Oxford Eye Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
  • Kay C; Centre for Ophthalmology, University Hospital Tuebingen, Tuebingen, Germany.
  • Durham T; Discipline of Genetics, Faculty of Medicine, Memorial University of Newfoundland, Craig L Dobbin Genetics Research Centre, St. John's, Canada.
  • Williamson N; Vitreoretinal Associates, Gainesville, FL, USA.
  • Bradley H; Foundation Fighting Blindness, Columbia, MD, USA.
  • Barclay M; Adelphi Values Ltd, Bollington, Cheshire, UK.
  • Boparai K; Adelphi Values Ltd, Bollington, Cheshire, UK. helena.bradley@adelphivalues.com.
  • Banhazi J; Adelphi Values Ltd, Bollington, Cheshire, UK.
Ophthalmol Ther ; 12(4): 2069-2085, 2023 Aug.
Article en En | MEDLINE | ID: mdl-37210697
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Idioma: En Revista: Ophthalmol Ther Año: 2023 Tipo del documento: Article País de afiliación: Francia
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Idioma: En Revista: Ophthalmol Ther Año: 2023 Tipo del documento: Article País de afiliación: Francia