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Harmonization of outcomes in epidermolysis bullosa: report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.
Korte, Eva W H; Spuls, Phyllis I; van den Akker, Peter C; Kiritsi, Dimitra; Laimer, Martin; Pasmooij, Anna M G; Riedl, Rainer; Vroom, Elizabeth; Wally, Verena; Welponer, Tobias; Bolling, Maria C.
Afiliación
  • Korte EWH; Department of Dermatology.
  • Spuls PI; Department of Dermatology, Amsterdam UMC, Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, the Netherlands.
  • van den Akker PC; Department of Genetics, Expertise Center for Blistering Diseases, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands.
  • Kiritsi D; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Laimer M; EB House Austria (part of the Department of Dermatology and Allergology).
  • Pasmooij AMG; Department of Dermatology.
  • Riedl R; Dutch Medicines Evaluation Board, Utrecht, the Netherlands.
  • Vroom E; DEBRA Austria, Vienna, Austria.
  • Wally V; Duchenne Parent Project, World Duchenne Organization, the Netherlands.
  • Welponer T; Research Program for Molecular Therapy of Genodermatoses (EB House Austria), University Hospital of the Paracelsus Medical University, Salzburg, Austria.
  • Bolling MC; EB House Austria (part of the Department of Dermatology and Allergology).
Br J Dermatol ; 190(2): 268-270, 2024 Jan 23.
Article en En | MEDLINE | ID: mdl-37792735

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Epidermólisis Ampollosa Límite: Humans Idioma: En Revista: Br J Dermatol Año: 2024 Tipo del documento: Article

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Epidermólisis Ampollosa Límite: Humans Idioma: En Revista: Br J Dermatol Año: 2024 Tipo del documento: Article