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The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation.
Gordon, Rachael A; Nguyen, Yann; Foulquier, Nathan; Beydon, Maxime; Gheita, Tamer A; Hajji, Raouf; Sahbudin, Ilfita; Hoi, Alberta; Ng, Wan-Fai; Mendonça, Jose Alexandre; Wallace, Daniel J; Shea, Beverley; Bruyn, George Aw; Goodman, Susan M; Fisher, Benjamin A; Baldini, Chiara; Torralba, Karina D; Bootsma, Hendrika; Akpek, Esen K; Karakus, Sezen; Baer, Alan N; Chakravarty, Soumya D; Terslev, Lene; D'Agostino, Maria-Antonietta; Mariette, Xavier; DiRenzo, Dana; Rasmussen, Astrid; Papas, Athena; Montoya, Cristina; Arends, Suzanne; Yusof, Md Yuzaiful Md; Pintilie, Ionut; Warner, Blake M; Hammitt, Katherine M; Strand, Vibeke; Bouillot, Coralie; Tugwell, Peter; Inanc, Nevsun; Andreu, José Luis; Wahren-Herlenius, Marie; Devauchelle-Pensec, Valerie; Shiboski, Caroline H; Benyoussef, Anas; Masli, Sharmila; Lee, Adrian Y S; Cornec, Divi; Bowman, Simon; Rischmueller, Maureen; McCoy, Sara S; Seror, Raphaele.
Afiliación
  • Gordon RA; Department of Medicine, Division of Rheumatology and Clinical Immunology, University of Pittsburgh, Pittsburgh, USA.
  • Nguyen Y; Department of Rheumatology, National Reference Center for Auto-immune Diseases, Sjogren's ERN Reconnect Center, Assistance Publique-Hôpitaux de Paris, Hôpital Bicêtre, Université Paris-Saclay, INSERM U1184, Le Kremlin Bicêtre, Paris, France.
  • Foulquier N; LBAI, UMR1227, Univ Brest, Inserm, CHU de Brest, Brest, France.
  • Beydon M; Department of Rheumatology, National Reference Center for Auto-immune Diseases, Sjogren's ERN Reconnect Center, Assistance Publique-Hôpitaux de Paris, Hôpital Bicêtre, Université Paris-Saclay, INSERM U1184, Le Kremlin Bicêtre, Paris, France.
  • Gheita TA; Rheumatology Department, Faculty of Medicine, Cairo University, Cairo, Egypt.
  • Hajji R; Internal Medicine Department, Sidi Bouzid Hospital, University of Sousse, Medicine Faculty of Sousse, 4000, Sousse, Tunisia; International Medical Community (IMC), Via Nomentana, 403, Rome, Lazio 00162, Italy.
  • Sahbudin I; Rheumatology Research Group, Institute of Inflammation and Ageing, University of Birmingham, Birmingham, UK; NIHR Birmingham Biomedical Research Centre, University Hospitals Birmingham NHS Foundation Trust and University of Birmingham, Birmingham, UK.
  • Hoi A; Monash University, Victoria, Australia.
  • Ng WF; Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne, UK; NIHR Newcastle Biomedical Research Centre, Newcastle upon Tyne Hospitals NHS Foundation Trust & Newcastle University, Newcastle upon Tyne, UK.
  • Mendonça JA; Postgraduate Program in Health Sciences/Rheumatology/Ultrasonography Service, Pontifical Catholic University of Campinas, SP, Brazil.
  • Wallace DJ; Cedars-Sinai Medical Center, Los Angeles, California, USA; University of California, David Geffen School of Medicine, Los Angeles, California, USA.
  • Shea B; Ottawa Hospital Research Institute, School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.
  • Bruyn GA; Department of Rheumatology, Tergooi MC hospitals, Hilversum, the Netherlands.
  • Goodman SM; Division of Rheumatology, Hospital for Special Surgery, New York, NY, USA; Department of Medicine, Weill Cornell Medical College, New York, NY, USA.
  • Fisher BA; Rheumatology Research Group, Institute of Inflammation and Ageing, University of Birmingham, Birmingham, UK; NIHR Birmingham Biomedical Research Centre, University Hospitals Birmingham NHS Foundation Trust and University of Birmingham, Birmingham, UK.
  • Baldini C; Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
  • Torralba KD; Division of Rheumatology, Department of Medicine, Loma Linda University School of Medicine, Loma Linda, California, USA; Division of Rheumatology, Department of Medicine, University of California Riverside School of Medicine, Riverside, California, USA.
  • Bootsma H; Department Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
  • Akpek EK; Ocular Surface Disease Clinic, The Wilmer Eye Institute, The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Karakus S; Ocular Surface Disease Clinic, The Wilmer Eye Institute, The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Baer AN; Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
  • Chakravarty SD; Janssen Scientific Affairs, LLC, Horsham, PA, USA, Drexel University College of Medicine, Philadelphia, PA, USA.
  • Terslev L; Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Copenhagen, Denmark; Department of Clinical Medicine, Faculty of Health and Medical Sciences, The University of Copenhagen, Copenhagen, Denmark.
  • D'Agostino MA; Rheumatology Department, Università Cattolica del Sacro Cuore, Fondazione Policlinico Universitario Agostino Gemelli, IRCSS, Rome, Italy.
  • Mariette X; Department of Rheumatology, National Reference Center for Auto-immune Diseases, Sjogren's ERN Reconnect Center, Assistance Publique-Hôpitaux de Paris, Hôpital Bicêtre, Université Paris-Saclay, INSERM U1184, Le Kremlin Bicêtre, Paris, France.
  • DiRenzo D; Rheumatology Department, University of Pennsylvania, Philadelphia, PA, USA.
  • Rasmussen A; Genes and Human Disease Program, Oklahoma Medical Research Foundation. Oklahoma City, OK, USA.
  • Papas A; Tufts School of Dental Medicine Boston, Massachusetts, USA.
  • Montoya C; Registered Dietitian Active patient volunteer for the Sjogren's Society of Canada, Canada.
  • Arends S; Department Rheumatology and Clinical Immunology, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
  • Yusof MYM; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, UK; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, UK.
  • Pintilie I; Rheumatology Department, Connect Medical, Piatra Neamt, Romania.
  • Warner BM; Salivary Disorders Unit, National Institute of Dental and Craniofacial Research, National Institutes of Health, Bethesda, Maryland, USA.
  • Hammitt KM; Sjögren's Foundation, Reston, VA, USA.
  • Strand V; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA, USA.
  • Bouillot C; Sjögren's Europe, Bienne, Switzerland.
  • Tugwell P; Dept of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
  • Inanc N; Division of Rheumatology, Marmara University School of Medicine, Istanbul, Turkey.
  • Andreu JL; Rheumatology Department, University Hospital Puerta de Hierro, Majadahonda, Spain.
  • Wahren-Herlenius M; Division of Rheumatology, Department of Medicine, Karolinska Institute, Sweden; Broegelmann Research Laboratory, Department of Clinical Science, University of Bergen, Norway.
  • Devauchelle-Pensec V; LBAI, UMR1227, Univ Brest, Inserm, CHU de Brest, Brest, France.
  • Shiboski CH; Department of Orafacial Sciences, University of California San Francisco, San Francisco, CA, USA.
  • Benyoussef A; Ophthalmology Department, centre hospitalier universitaire de Brest, 2, avenue Foch, 29609 Brest cedex, France.
  • Masli S; Boston University School of Medicine, Boston, MA, USA.
  • Lee AYS; Department of Clinical Immunology & Allergy, Westmead Hospital, Westmead, NSW, Australia.
  • Cornec D; LBAI, UMR1227, Univ Brest, Inserm, CHU de Brest, Brest, France.
  • Bowman S; Rheumatology Research Group, Institute of Inflammation and Ageing, University of Birmingham, Birmingham, UK; NIHR Birmingham Biomedical Research Centre, University Hospitals Birmingham NHS Foundation Trust and University of Birmingham, Birmingham, UK; Institute of Inflammation & Ageing, Universi
  • Rischmueller M; The Queen Elizabeth Hospital, Woodville and University of Adelaide, Adelaide, Australia.
  • McCoy SS; Department of Medicine, Division of Rheumatology, University of Wisconsin School of Medicine and Public Health, Madison, USA. Electronic address: ssmccoy@medicine.wisc.edu.
  • Seror R; Department of Rheumatology, National Reference Center for Auto-immune Diseases, Sjogren's ERN Reconnect Center, Assistance Publique-Hôpitaux de Paris, Hôpital Bicêtre, Université Paris-Saclay, INSERM U1184, Le Kremlin Bicêtre, Paris, France.
Semin Arthritis Rheum ; 65: 152378, 2024 Apr.
Article en En | MEDLINE | ID: mdl-38310657
ABSTRACT
Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Síndrome de Sjögren Límite: Humans Idioma: En Revista: Semin Arthritis Rheum Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Síndrome de Sjögren Límite: Humans Idioma: En Revista: Semin Arthritis Rheum Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos