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Lessons Learned From Clinical Studies in Centronuclear Myopathies: The Patient Perspective-A Qualitative Study.
Stinissen, Lizan; Böhm, Johann; Bouma, Sietse; van Tienen, Jeno; Fischer, Holger; Hughes, Zak; Lennox, Anne; Ward, Erin; Wood, Marie; Foley, A Reghan; Oortwijn, Wija; Jungbluth, Heinz; Voermans, Nicol C.
Afiliación
  • Stinissen L; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Böhm J; Institut de Génétique et de Biologie Moléculaire et Cellulaire (IGBMC), Université de Strasbourg, Illkirch, France.
  • Bouma S; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
  • van Tienen J; ZNM-ZusammenStark!, Stuttgart, Germany.
  • Fischer H; ZNM-ZusammenStark!, Stuttgart, Germany.
  • Hughes Z; Myotubular Trust, London, United Kingdom.
  • Lennox A; Myotubular Trust, London, United Kingdom.
  • Ward E; MTM-CNM Family Connection, Methuen, Massachusetts, United States.
  • Wood M; MTM-CNM Family Connection, Methuen, Massachusetts, United States.
  • Foley AR; Neuromuscular and Neurogenetic Disorders of Childhood Section, Bethesda, Maryland, United States.
  • Oortwijn W; Department Health Evidence, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Jungbluth H; Department of Paediatric Neurology, Neuromuscular Service, Evelina London Children's Hospital, Guy's and St Thomas' Hospital NHS Foundation Trust, London, United Kingdom; Randall Centre for Cell and Molecular Biophysics, Muscle Signalling Section, Faculty of Life Sciences and Medicine (FoLSM), King'
  • Voermans NC; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands. Electronic address: Nicol.Voermans@radboudumc.nl.
Clin Ther ; 2024 Apr 25.
Article en En | MEDLINE | ID: mdl-38670885
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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: Clin Ther Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: Clin Ther Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos