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The PNS Nurse Program: A Health Care Support Concept for Patients With Immune-Mediated Peripheral Nervous System Diseases.
Pawlitzki, Marc; Gasis, Marcia; Masanneck, Lars; Meuth, Sven G; Ruck, Tobias.
Afiliación
  • Pawlitzki M; Department of Neurology (MP, MG, LM, SGM, TR), Medical Faculty University Hospital Düsseldorf; and Hasso Plattner Institute (LM), University of Potsdam, Germany.
  • Gasis M; Department of Neurology (MP, MG, LM, SGM, TR), Medical Faculty University Hospital Düsseldorf; and Hasso Plattner Institute (LM), University of Potsdam, Germany.
  • Masanneck L; Department of Neurology (MP, MG, LM, SGM, TR), Medical Faculty University Hospital Düsseldorf; and Hasso Plattner Institute (LM), University of Potsdam, Germany.
  • Meuth SG; Department of Neurology (MP, MG, LM, SGM, TR), Medical Faculty University Hospital Düsseldorf; and Hasso Plattner Institute (LM), University of Potsdam, Germany.
  • Ruck T; Department of Neurology (MP, MG, LM, SGM, TR), Medical Faculty University Hospital Düsseldorf; and Hasso Plattner Institute (LM), University of Potsdam, Germany.
Neurol Clin Pract ; 14(3): e200295, 2024 Jun.
Article en En | MEDLINE | ID: mdl-38715732
ABSTRACT

Background:

Immune-mediated peripheral nervous system (PNS) disorders pose diagnostic and therapeutic challenges, necessitating collaborative, patient-centered care. Limited access to specialized centers leads to delayed diagnosis and care, as seen during the COVID-19 pandemic. To address these challenges, accessible specialized care is crucial. On-site support plays a vital role in advising and assisting patients and caregivers, enabling multidisciplinary care for PNS diseases. Recent

Findings:

The PNS Nurse Education Program tackles these complexities, using specialized nurses experienced in multiple sclerosis and Parkinson disease. Focusing on peripheral neuroimmunologic disorders, PNS nurses monitor disease severity, optimize communication, and provide therapeutic support in the recently started era of available immunotherapies. Collaboration with other healthcare sectors and support groups further enhances patient care. Implications for Practice Ultimately, the PNS Nurse Education Program aims to bridge the gap between complex treatments and limited specialized care, improving patient outcomes and relieving burdens on patients, caregivers, and healthcare systems.

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: Neurol Clin Pract Año: 2024 Tipo del documento: Article País de afiliación: Alemania

Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Idioma: En Revista: Neurol Clin Pract Año: 2024 Tipo del documento: Article País de afiliación: Alemania