'Will anybody listen?' Parents' views on childhood asthma care: a qualitative study.
BJGP Open
; 2024 Oct 01.
Article
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| MEDLINE
| ID: mdl-38806215
ABSTRACT
BACKGROUND:
Asthma is the most common chronic disease in children, resulting in considerable morbidity and healthcare utilisation, especially in geographical areas with high deprivation. Parents play a pivotal role in children's asthma management.AIM:
To explore the views of parents whose children have asthma, regarding barriers and facilitators to receiving adequate asthma care. DESIGN &SETTING:
A qualitative study conducted in an urban, multi-ethnic setting with high socioeconomic deprivation and paediatric asthma-related hospital admissions.METHOD:
The study used a pragmatic approach underpinned by a perspective of critical realism. Parents of children with asthma were recruited through purposive and convenience sampling, and data were collected through semi-structured interviews. Transcripts were analysed using thematic analysis, facilitated by NVivo12 software.RESULTS:
Ten parents participated in nine interviews. Six themes were identified relating to the following (1) the establishment of a new life dynamic following a diagnosis of asthma; (2) the turbulent and drawn-out process of asthma diagnosis; (3) the roles and expectations of the partnership established between parents and healthcare services; (4) the importance of schools in asthma management; (5) sources and access to relevant information; and (6) the importance of social support networks. Parents frequently felt unsupported and misunderstood, particularly during the diagnostic process.CONCLUSION:
Unmet parental educational and emotional needs, particularly around the time of diagnosis, were identified as a key barrier to adequate asthma management. Deeper understanding of gaps in support can instruct asthma care delivery and inform co-produced interventions, thus improving asthma outcomes in children.
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Colección:
01-internacional
Banco de datos:
MEDLINE
Idioma:
En
Revista:
BJGP Open
Año:
2024
Tipo del documento:
Article