A consensus approach to wound care in epidermolysis bullosa.
J Am Acad Dermatol
; 67(5): 904-17, 2012 Nov.
Article
em En
| MEDLINE
| ID: mdl-22387035
ABSTRACT
BACKGROUND:
Wound care is the cornerstone of treatment for patients with epidermolysis bullosa (EB); however, there are currently no guidelines to help practitioners care for these patients.OBJECTIVES:
The objective of this study was to generate a list of recommendations that will enable practitioners to better care for patients with EB.METHODS:
An expert panel generated a list of recommendations based on the best evidence available. The recommendations were translated into a survey, and sent to other EB experts to generate consensus using an online-based modified Delphi method. The list was refined and grouped into themes and specific recommendations.RESULTS:
There were 15 respondents (45% response rate), with significant experience in the EB field (>10 years [67%]). Respondents included physicians (67%), nurses (17%), and allied health professionals (7%). There was more than 85% agreement for all the proposed items. These were further refined and grouped into 5 main themes (assessment and management of factors that impair healing, patient-centered concerns, local wound care, development of an individualized care plan, and organizational support) and 17 specific recommendations.LIMITATIONS:
There is a paucity of scientific evidence with most recommendations based on expert opinion.CONCLUSIONS:
These recommendations will provide practitioners with a framework for caring for these patients. Additional scientific research including effectiveness studies for everyday practice and expert consensus, may further refine these recommendations.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Epidermólise Bolhosa
Tipo de estudo:
Etiology_studies
/
Guideline
/
Qualitative_research
Limite:
Humans
/
Infant
Idioma:
En
Revista:
J Am Acad Dermatol
Ano de publicação:
2012
Tipo de documento:
Article
País de afiliação:
Canadá