Symptom management and psychological support for families are the cornerstones of end-of-life care for children with spinal muscular atrophy type 1.

Di Pede, Chiara; Agosto, Caterina; De Tommasi, Valentina; De Gregorio, Alessandra; Benini, Franca

Di Pede, Chiara; Agosto, Caterina; De Tommasi, Valentina; De Gregorio, Alessandra; Benini, Franca.

Afiliação

Di Pede C; Department of Women's and Children's Health, Pediatric Pain and Palliative Care Service, University of Padua, Padua, Italy.
Agosto C; Department of Women's and Children's Health, Pediatric Pain and Palliative Care Service, University of Padua, Padua, Italy.
De Tommasi V; Department of Women's and Children's Health, Pediatric Pain and Palliative Care Service, University of Padua, Padua, Italy.
De Gregorio A; Department of Women's and Children's Health, Pediatric Pain and Palliative Care Service, University of Padua, Padua, Italy.
Benini F; Department of Women's and Children's Health, Pediatric Pain and Palliative Care Service, University of Padua, Padua, Italy.

Acta Paediatr ; 107(1): 140-144, 2018 Jan.

Article em En | MEDLINE | ID: mdl-28941298

Assuntos

Sistemas de Apoio Psicossocial; Atrofias Musculares Espinais da Infância; Assistência Terminal; Feminino; Humanos; Lactente; Masculino; Pais/psicologia; Estudos Retrospectivos

Palavras-chave

Dyspnoea; End of life; Paediatric palliative care; Pain relief; Spinal muscular atrophy type 1

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Assistência Terminal / Atrofias Musculares Espinais da Infância / Sistemas de Apoio Psicossocial Tipo de estudo: Diagnostic_studies / Observational_studies Limite: Female / Humans / Infant / Male Idioma: En Revista: Acta Paediatr Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Itália

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