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"What if this is my chance to save my life?" A semistructured interview study on the motives and experiences of end-stage renal disease patients who engaged in public solicitation of a living kidney donor.
Pronk, Mathilde C; Slaats, Dorthe; Zuidema, Willij C; Hilhorst, Medard T; Dor, Frank J M F; Betjes, Michiel; Weimar, Willem; van de Wetering, Jacqueline; Massey, Emma K.
Afiliação
  • Pronk MC; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
  • Slaats D; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
  • Zuidema WC; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
  • Hilhorst MT; Department of Medical Ethics and Philosophy, Erasmus MC, Rotterdam, The Netherlands.
  • Dor FJMF; Division of Transplant Surgery, Department of Surgery, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands.
  • Betjes M; Department of Renal and Transplant Services, Hammersmith Hospital, Imperial College, London, UK.
  • Weimar W; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
  • van de Wetering J; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
  • Massey EK; Department of Internal Medicine, Nephrology and Transplantation, Erasmus MC, Rotterdam, The Netherlands.
Transpl Int ; 31(3): 318-331, 2018 03.
Article em En | MEDLINE | ID: mdl-29130538
The increase in patients using public solicitation (PS) to find a living kidney donor has generated a debate about the ethical complexities of PS. To investigate why patients engaged in PS and what they experienced during PS, we conducted semistructured interviews with 20 Dutch patients with end-stage renal disease who had publicly solicited a living donor. Transcripts were thematically analyzed. We identified ten themes on patients' considerations preceding PS: cautiousness in discussing living donation within social network; reluctance to accept a kidney from loved ones; rejection/withdrawal of related donor candidates; moral objections to paid donation; the ease of social media; encouraged by others; ends justifying the means; despair and urge to take action; public disclosure of vulnerability; fear of being (perceived to be) selfish. We identified nine themes on patients' experiences: positive emotions and support generated by action; genuine and ulterior motives for donation; patients acting as educators and screeners; time- and energy-consuming process; emotionally taxing process; positive interactions with donor candidates; feeling of dependency and obligation; limited cooperation from health professionals; demands a proactive attitude and media strategy. These results can inform and complement (existing) policies on PS and provide content for education of patients who are considering PS.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transplante de Rim / Doadores Vivos Tipo de estudo: Qualitative_research Limite: Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Transpl Int Assunto da revista: TRANSPLANTE Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transplante de Rim / Doadores Vivos Tipo de estudo: Qualitative_research Limite: Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Transpl Int Assunto da revista: TRANSPLANTE Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda