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mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology.
Seys, S F; Bousquet, J; Bachert, C; Fokkens, W J; Agache, I; Bernal-Sprekelsen, M; Callebaut, I; Cardel, L O; Carrie, S; Castelnuovo, P; Cathcart, R; Constantinidis, J; Cools, L; Cornet, M; Clement, G; de Sousa, J C; Cox, T; Doulaptsi, M; Gevaert, P; Hopkins, C; Hox, V; Hummel, T; Hosemann, W; Jacobs, R; Jorissen, M; Landis, B N; Leunig, A; Lund, V J; Mullol, J; Onerci, M; Palkonen, S; Proano, I; Prokopakis, E; Ryan, D; Riechelmann, H; Saevels, J; Segboer, C; Speleman, K; Steinsvik, E A; Surda, P; Tomazic, P V; Vanderveken, O; Van Gerven, L; Van Zele, T; Verhaeghe, B; Vierstraete, K; Vlaminck, S; Wilkinson, J; Williams, S; Pugin, B.
Afiliação
  • Seys SF; European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
  • Bousquet J; Department of Respiratory Disease, University Hospital Arnaud de Villeneuve, Montpellier, France.
  • Bachert C; Upper Airways Research Laboratory, Department of Otorhinolaryngology-Head and Neck Surgery, Ghent University, Belgium.
  • Fokkens WJ; Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
  • Agache I; Faculty of Medicine, Transylvania University, Brasov, Romania.
  • Bernal-Sprekelsen M; Department of Otorhinolaryngology, Hospital Clinic Universitari, Barcelona, Spain.
  • Callebaut I; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
  • Cardel LO; Division of ENT Diseases, Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.
  • Carrie S; ENT Department, Freeman Hospital, Newcastle upon Tyne, UK.
  • Castelnuovo P; ENT Department, Ospedale Di Circolo E Fondazione Macchi, Varese, Italy.
  • Cathcart R; ENT Department, Cumberland Infirmary, Carlisle, Cumbria, UK.
  • Constantinidis J; 2nd Academic ENT department, Aristotle University of Thessaloniki, Papageorgiou General Hospital, Thessaloniki, Greece.
  • Cools L; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
  • Cornet M; Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
  • Clement G; ENT Department, AZ Damiaan, Oostende, Belgium.
  • de Sousa JC; Community Health, Life and Health Sciences Research Institute, School of Health Sciences, Univerity of Minho, Portugal.
  • Cox T; ENT Department, Jessa hospital, Hasselt, Belgium.
  • Doulaptsi M; Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Crete, Greece.
  • Gevaert P; Upper Airways Research Laboratory, Department of Otorhinolaryngology-Head and Neck Surgery, Ghent University, Belgium.
  • Hopkins C; ENT Department, Guys and St Thomas NHS Foundation Trust, London, United Kingdom.
  • Hox V; Departement dOtorhinolaryngologie, Cliniques Universitaires Saint-Luc, Belgium.
  • Hummel T; Smell and Taste Clinic, ENT Department, Technische Universitat Dresden, Dresden, Germany.
  • Hosemann W; ENT Department, University of Greifswald, Germany.
  • Jacobs R; Department of Otorhinolaryngology, Head and Neck Surgery, General Hospital Sint-Blasius, Dendermonde, Belgium.
  • Jorissen M; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
  • Landis BN; Unite de Rhinologie-Olfactologie, Service dOto-Rhino-Laryngologie et de Chirurgie cervico-faciale, Hopitaux Universitaires de Geneve, Geneve, Suisse.
  • Leunig A; ENT Department, Ludwig Maximilians University Munich, Germany.
  • Lund VJ; UCL and Honorary Consultant ENT Surgeon, UCLH, UK.
  • Mullol J; IDIBAPS, Hospital Clinic, Universitat de Barcelona, CIBERES, Barcelona, Catalonia, Spain.
  • Onerci M; ENT Department, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
  • Palkonen S; European Federation of Allergy and Airways Diseases Patients Associations (EFA), Brussels, Belgium.
  • Proano I; European Federation of Allergy and Airways Diseases Patients Associations (EFA), Brussels, Belgium.
  • Prokopakis E; ENT Department, Jessa hospital, Hasselt, Belgium.
  • Ryan D; Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, UK.
  • Riechelmann H; Universitatsklinik fur Hals- Nasen- Ohrenheilkunde Innsbruck, Austria.
  • Saevels J; Association of Pharmacists in Belgium, Brussels, Belgium.
  • Segboer C; Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands.
  • Speleman K; ENT Department, AZ Sint-Jan, Bruges, Belgium.
  • Steinsvik EA; Department of Otorhinolaryngology, Oslo University Hospital, Rikshospitalet, Oslo, Norway.
  • Surda P; Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Crete, Greece.
  • Tomazic PV; Department of General ORL, Head and Neck Surgery, Medical University of Graz, Graz, Austria.
  • Vanderveken O; ENT Department, University Hospital of Antwerp, Wilrijk, Belgium.
  • Van Gerven L; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, Belgium.
  • Van Zele T; Upper Airways Research Laboratory, Department of Otorhinolaryngology-Head and Neck Surgery, Ghent University, Belgium.
  • Verhaeghe B; ENT Department, Sint-Jozefskliniek, Izegem, Belgium.
  • Vierstraete K; ENT Department, AZ Groeninge, Kortrijk, Belgium.
  • Vlaminck S; ENT Department, AZ Sint-Jan, Bruges, Belgium.
  • Wilkinson J; Pharmaceutical Group of the European Union, Brussels, Belgium.
  • Williams S; International Primary Care Respiratory Group, Aberdeen, UK.
  • Pugin B; European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
Rhinology ; 56(3): 209-215, 2018 Sep 01.
Article em En | MEDLINE | ID: mdl-29466477
ABSTRACT
Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Autocuidado / Sinusite / Rinite / Aplicativos Móveis Limite: Humans Idioma: En Revista: Rhinology Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Bélgica
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Autocuidado / Sinusite / Rinite / Aplicativos Móveis Limite: Humans Idioma: En Revista: Rhinology Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Bélgica