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A preliminary study of telemedicine for patients with hepatic glycogen storage disease and their healthcare providers: from bedside to home site monitoring.
Hoogeveen, Irene J; Peeks, Fabian; de Boer, Foekje; Lubout, Charlotte M A; de Koning, Tom J; Te Boekhorst, Sebastiaan; Zandvoort, Robert-Jan; Burghard, Rob; van Spronsen, Francjan J; Derks, Terry G J.
Afiliação
  • Hoogeveen IJ; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • Peeks F; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • de Boer F; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • Lubout CMA; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • de Koning TJ; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • Te Boekhorst S; Patient Connect B.V., Bilthoven, The Netherlands.
  • Zandvoort RJ; Pi IQ, Groningen, the Netherlands.
  • Burghard R; enerGQcare B.V., Groningen, The Netherlands.
  • van Spronsen FJ; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands.
  • Derks TGJ; Section of Metabolic Diseases, Beatrix Children's Hospital University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands. t.g.j.derks@umcg.nl.
J Inherit Metab Dis ; 41(6): 929-936, 2018 11.
Article em En | MEDLINE | ID: mdl-29600495

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença de Depósito de Glicogênio Tipo I / Telemedicina / Aplicativos Móveis Tipo de estudo: Guideline / Observational_studies Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male / Middle aged Idioma: En Revista: J Inherit Metab Dis Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença de Depósito de Glicogênio Tipo I / Telemedicina / Aplicativos Móveis Tipo de estudo: Guideline / Observational_studies Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male / Middle aged Idioma: En Revista: J Inherit Metab Dis Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda