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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis.
Weitzman, Elissa R; Wisk, Lauren E; Salimian, Parissa K; Magane, Kara M; Dedeoglu, Fatma; Hersh, Aimee O; Kimura, Yukiko; Mandl, Kenneth D; Ringold, Sarah; Natter, Marc.
Afiliação
  • Weitzman ER; Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Wisk LE; Department of Pediatrics, Harvard Medical School, Boston 02115, USA.
  • Salimian PK; Computational Health Informatics Program, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Magane KM; Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Dedeoglu F; Department of Pediatrics, Harvard Medical School, Boston 02115, USA.
  • Hersh AO; Division of Developmental Medicine, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Kimura Y; Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Mandl KD; Rheumatology Program, Division of Immunology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA 02115, USA.
  • Ringold S; Division of Pediatric Rheumatology, University of Utah School of Medicine and Primary Children's Medical Center, Salt Lake City, UT 84113, USA.
  • Natter M; Division of Pediatric Rheumatology, Hackensack University Medical Center, Hackensack, NJ 07601, USA.
J Patient Rep Outcomes ; 22018.
Article em En | MEDLINE | ID: mdl-29645010
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Patient Rep Outcomes Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Estados Unidos
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Patient Rep Outcomes Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Estados Unidos