Patterns of healthcare utilisation for respiratory complications of adults with neuromuscular disease: a population study.
Eur Respir J
; 52(3)2018 09.
Article
em En
| MEDLINE
| ID: mdl-30139772
ABSTRACT
Our objective was to quantify health service utilisation including monitoring and treatment of respiratory complications for adults with neuromuscular disease (NMD), identifying practice variation and adherence to guideline recommendations at a population level.We conducted a population-based longitudinal cohort study (2003-2015) of adults with NMD using hospital diagnostic and health insurance billing codes within administrative health databases.We identified 185â586 adults with NMD. Mean age 52â
years, 59% female. 41â173 (22%) went to an emergency department for respiratory complications on average 1.6 times every 3â
years; 14â947 (8%) individuals were admitted to hospital 1.4 times every 3â
years. Outpatient respiratory specialist visits occurred for 64â084 (35%) with four visits every 3â
years, although substantial variation in visit frequency was found. 157â285 (85%) went to the emergency department (all-cause) almost 4 times every 3â
years, 100â052 (54%) were admitted to hospital. Individuals with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND) had more emergency department visits compared with other types of NMD (p<0.0001).One-third of adults with NMD received respiratory specialist care at a frequency recommended by professional guidelines, although substantial variation exists. Emergent healthcare utilisation was substantial, emphasising the burden of NMD on the healthcare system and urgent need to improve community and social supports, particularly for ALS/MND patients.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Transtornos Respiratórios
/
Aceitação pelo Paciente de Cuidados de Saúde
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Serviço Hospitalar de Emergência
/
Hospitalização
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Doenças Neuromusculares
Tipo de estudo:
Etiology_studies
/
Guideline
/
Observational_studies
/
Prognostic_studies
/
Risk_factors_studies
Limite:
Adolescent
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Adult
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Aged
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Aged80
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Female
/
Humans
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Male
/
Middle aged
País/Região como assunto:
America do norte
Idioma:
En
Revista:
Eur Respir J
Ano de publicação:
2018
Tipo de documento:
Article
País de afiliação:
Canadá