User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study.

Fadda, Marta; Jobin, Anna; Blasimme, Alessandro; Greshake Tzovaras, Bastian; Price Ball, Mad; Vayena, Effy

Fadda, Marta; Jobin, Anna; Blasimme, Alessandro; Greshake Tzovaras, Bastian; Price Ball, Mad; Vayena, Effy.

Afiliação

Fadda M; Health Ethics and Policy Lab, Department of Health Sciences and Technology, ETH Zurich, Zurich, Switzerland.
Jobin A; Health Ethics and Policy Lab, Department of Health Sciences and Technology, ETH Zurich, Zurich, Switzerland.
Blasimme A; Health Ethics and Policy Lab, Department of Health Sciences and Technology, ETH Zurich, Zurich, Switzerland.
Greshake Tzovaras B; Open Humans Foundation, Boston, MA, United States.
Price Ball M; Division of Environmental Genomics and Systems Biology, Lawrence Berkeley National Laboratory, Berkeley, CA, United States.
Vayena E; Open Humans Foundation, Boston, MA, United States.

JMIR Res Protoc ; 7(11): e10939, 2018 Nov 28.

Article em En | MEDLINE | ID: mdl-30487120

Palavras-chave

data sharing; ethics; mobile phone; patient participation; patient-generated health data; questionnaire; survey

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Idioma: En Revista: JMIR Res Protoc Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Suíça

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