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Screening for Family Psychosocial Risk in Pediatric Hematopoietic Stem Cell Transplantation with the Psychosocial Assessment Tool.
Pai, Ahna L H; Swain, Avi Madan; Chen, Fang Fang; Hwang, Wei-Ting; Vega, Gabriela; Carlson, Olivia; Ortiz, Francisco Argueta; Canter, Kimberly; Joffe, Naomi; Kolb, E Anders; Davies, Stella M; Chewning, Joseph H; Deatrick, Janet; Kazak, Anne E.
Afiliação
  • Pai ALH; Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine.
  • Swain AM; Division of Pediatric Hematology-Oncology, Children's of Alabama; Department of Pediatrics, University of Alabama at Birmingham.
  • Chen FF; Center for Healthcare Delivery Science, Nemours Children's Health System; Sidney Kimmel Medical School at Thomas Jefferson University.
  • Hwang WT; Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine of the University of Pennsylvania.
  • Vega G; Center for Healthcare Delivery Science, Nemours Children's Health System.
  • Carlson O; Center for Healthcare Delivery Science, Nemours Children's Health System.
  • Ortiz FA; Center for Healthcare Delivery Science, Nemours Children's Health System.
  • Canter K; Center for Healthcare Delivery Science, Nemours Children's Health System; Sidney Kimmel Medical School at Thomas Jefferson University.
  • Joffe N; Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine.
  • Kolb EA; Sidney Kimmel Medical School at Thomas Jefferson University; Center for Cancer and Blood Disorders, Nemours Children's Health System.
  • Davies SM; Department of Pediatrics, University of Cincinnati College of Medicine; Cancer and Blood Diseases Institute, Cincinnati Children's Hospital.
  • Chewning JH; Division of Pediatric Hematology-Oncology, Children's of Alabama; Department of Pediatrics, University of Alabama at Birmingham.
  • Deatrick J; Department of Family and Community Health, University of Pennsylvania School of Nursing.
  • Kazak AE; Center for Healthcare Delivery Science, Nemours Children's Health System; Department of Pediatrics, Sidney Kimmel Medical School at Thomas Jefferson University. Electronic address: kazakster@gmail.com.
Biol Blood Marrow Transplant ; 25(7): 1374-1381, 2019 07.
Article em En | MEDLINE | ID: mdl-30878608
Family psychosocial risk screening is an important initial step in delivering evidence-based care in hematopoietic stem cell transplantation (HCT). Establishing an evidence-based screening approach that is acceptable, reliable, and valid is an essential step in psychosocial care delivery. This is a 3-institution multimethod study. In part 1, caregivers of children about to undergo HCT (n = 140) completed the Psychosocial Assessment Tool-Hematopoietic Cell Transplantation (PAT-HCT), a brief parent report screener adapted for HCT, and validating questionnaires. Families received feedback on their risks identified on the PAT-HCT. In part 2, 12 caregivers completed a semistructured interview about their perceptions of the PAT and the feedback process. The reliability and validity of the PAT-HCT total and subscale scores were tested using Kuder-Richardson-20 (KR-20) and Pearson correlations. Thematic content analysis was used to analyze the qualitative interview data. Internal consistency for the total score (KR-20 = .88) and the Child Problems, Sibling Problems, Family Problems, and Stress Reactions subscales were strong (KR-20 >.70). Family Structure, Social Support, and Family Beliefs subscales were adequate (KR-20 = .55 to .63). Moderate to strong correlations with the criteria measures provided validation for the total and subscale scores. Feedback was provided to 97.14% of the families who completed the PAT-HCT, and the mean rating of acceptability was >4.00 (on a 5-point scale). The qualitative data indicate that families appreciate the effort to provide screening and feedback. The PAT-HCT is a psychometrically sound screener for use in HCT. Feedback can be given to families. Both the screener and the feedback process are acceptable to caregivers.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Estresse Psicológico / Família / Inquéritos e Questionários / Cuidadores / Transplante de Células-Tronco Hematopoéticas / Neoplasias Tipo de estudo: Clinical_trials / Diagnostic_studies / Etiology_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies / Screening_studies Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: Biol Blood Marrow Transplant Assunto da revista: HEMATOLOGIA / TRANSPLANTE Ano de publicação: 2019 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Estresse Psicológico / Família / Inquéritos e Questionários / Cuidadores / Transplante de Células-Tronco Hematopoéticas / Neoplasias Tipo de estudo: Clinical_trials / Diagnostic_studies / Etiology_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies / Screening_studies Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: Biol Blood Marrow Transplant Assunto da revista: HEMATOLOGIA / TRANSPLANTE Ano de publicação: 2019 Tipo de documento: Article