Phase I cancer trials: a qualitative study of specialist palliative care.
BMJ Support Palliat Care
; 10(2): 234-241, 2020 Jun.
Article
em En
| MEDLINE
| ID: mdl-31784463
ABSTRACT
OBJECTIVE:
In recent years, a simultaneous care model for advanced cancer patients has been recommended meaning that palliative care services are offered throughout their cancer journey. To inform the successful adoption of this model in a phase I trial context, the study aimed to explore patients' care needs and their perceptions of specialist palliative care.METHODS:
Semi-structured interviews were conducted with 10 advanced cancer patients referred to the Experimental Cancer Medicine team. Interviews were transcribed verbatim and thematically analysed with a framework approach to data organisation.RESULTS:
Despite reporting considerable physical and psychological impacts from cancer and cancer treatment, participants did not recognise a need for specialist palliative care support. Understanding of the role of specialist palliative care was largely limited to end of life care. There was perceived conflict between considering a phase I trial and receiving specialist palliative care. Participants felt specialist palliative care should be introduced earlier and educational resources developed to increase patient acceptability of palliative care services. SIGNIFICANCE OFRESULTS:
Patients with advanced cancer referred for phase I trials are likely to benefit from specialist palliative care. However, this study suggests patients may not recognise a need for support nor accept this support due to misperceptions about the role of palliative care. Developing a specific educational resource about specialist palliative care for this population would help overcome barriers to engaging with a simultaneous care model.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Cuidados Paliativos
/
Aceitação pelo Paciente de Cuidados de Saúde
/
Ensaios Clínicos Fase I como Assunto
/
Sujeitos da Pesquisa
/
Neoplasias
Tipo de estudo:
Qualitative_research
Limite:
Female
/
Humans
/
Male
/
Middle aged
Idioma:
En
Revista:
BMJ Support Palliat Care
Ano de publicação:
2020
Tipo de documento:
Article
País de afiliação:
Reino Unido