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A review and definition of 'usual care' in genetic counseling trials to standardize use in research.
Biesecker, Barbara B; Lillie, Sarah E; Amendola, Laura M; Donohue, Katherine E; East, Kelly M; Foreman, Ann Katherine M; Gilmore, Marian J; Greve, Veronica; Liangolou, Billie; O'Daniel, Julianne M; Odgis, Jacqueline A; Rego, Shannon; Rolf, Bradley; Scollon, Sarah; Suckiel, Sabrina A; Zepp, Jamilyn; Joseph, Galen.
Afiliação
  • Biesecker BB; Genomics, Bioinformatics and Translation, RTI International, Washington, DC, USA.
  • Lillie SE; Center for Communication Science, RTI International, Research Triangle Park, NC, USA.
  • Amendola LM; Division of Medical Genetics, University of Washington, Seattle, WA, USA.
  • Donohue KE; Institute for Genomic Health, The Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • East KM; HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
  • Foreman AKM; Department of Genetics, University of North Carolina, Chapel Hill, NC, USA.
  • Gilmore MJ; Department of Translational and Applied Genomics, Kaiser Permanente - Center for Health Research, Portland, OR, USA.
  • Greve V; HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
  • Liangolou B; UCSF Benioff Children's Hospital, San Francisco, CA, USA.
  • O'Daniel JM; Department of Genetics, University of North Carolina, Chapel Hill, NC, USA.
  • Odgis JA; Institute for Genomic Health, The Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Rego S; Institute for Human Genetics, University of California, San Francisco, CA, USA.
  • Rolf B; Division of Medical Genetics, University of Washington, Seattle, WA, USA.
  • Scollon S; Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA.
  • Suckiel SA; Institute for Genomic Health, The Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Zepp J; Department of Translational and Applied Genomics, Kaiser Permanente - Center for Health Research, Portland, OR, USA.
  • Joseph G; Department of Humanities and Social Sciences, University of California, San Francisco, CA, USA.
J Genet Couns ; 30(1): 42-50, 2021 02.
Article em En | MEDLINE | ID: mdl-33278053
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Aconselhamento / Aconselhamento Genético Tipo de estudo: Clinical_trials / Guideline / Prognostic_studies / Risk_factors_studies Limite: Humans Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Aconselhamento / Aconselhamento Genético Tipo de estudo: Clinical_trials / Guideline / Prognostic_studies / Risk_factors_studies Limite: Humans Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos