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A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.
Evans, Kiah; van der Meer, Larah; Eggleston, Matthew J F; Taylor, Lauren J; Thabrew, Hiran; Waddington, Hannah; Whitehouse, Andrew J O.
Afiliação
  • Evans K; Telethon Kids Institute, University of Western Australia, PO Box 855, Perth, WA, 6872, Australia. kiah.evans@telethonkids.org.au.
  • van der Meer L; School of Allied Health, Curtin University, Perth, WA, Australia. kiah.evans@telethonkids.org.au.
  • Eggleston MJF; Cooperative Research Centre for Living with Autism (Autism CRC), Brisbane, QLD, Australia. kiah.evans@telethonkids.org.au.
  • Taylor LJ; Cooperative Research Centre for Living with Autism (Autism CRC), Brisbane, QLD, Australia.
  • Thabrew H; Autism New Zealand, Lower Hutt, New Zealand.
  • Waddington H; School of Education, Victoria University of Wellington, Wellington, New Zealand.
  • Whitehouse AJO; Mental Health Division, Canterbury District Health Board, Christchurch, New Zealand.
J Autism Dev Disord ; 52(2): 771-781, 2022 Feb.
Article em En | MEDLINE | ID: mdl-33788075
ABSTRACT
The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transtorno Autístico / Transtorno do Espectro Autista Tipo de estudo: Diagnostic_studies / Prognostic_studies Limite: Adolescent / Adult / Humans País/Região como assunto: Oceania Idioma: En Revista: J Autism Dev Disord Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Austrália

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Transtorno Autístico / Transtorno do Espectro Autista Tipo de estudo: Diagnostic_studies / Prognostic_studies Limite: Adolescent / Adult / Humans País/Região como assunto: Oceania Idioma: En Revista: J Autism Dev Disord Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Austrália