Living with osteogenesis imperfecta: A qualitative study exploring experiences and psychosocial impact from the perspective of patients, parents and professionals.

Hill, Melissa; Hammond, Jennifer; Sharmin, Mithila; Lewis, Celine; Heathfield, Mark; Crowe, Belinda; Götherström, Cecilia; Chitty, Lyn S; DeVile, Catherine

Hill, Melissa; Hammond, Jennifer; Sharmin, Mithila; Lewis, Celine; Heathfield, Mark; Crowe, Belinda; Götherström, Cecilia; Chitty, Lyn S; DeVile, Catherine.

Afiliação

Hill M; NHS North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK. Electronic address: Melissa.hill@ucl.ac.uk.
Hammond J; NHS North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.
Sharmin M; BSc Paediatrics and Child Health, UCL Great Ormond Street Institute of Child Health, London, UK.
Lewis C; NHS North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; Population, Policy and Practice, UCL Great Ormond Street Institute of Child Health, London, UK.
Heathfield M; Osteogenesis Imperfecta Service, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Crowe B; Osteogenesis Imperfecta Service, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Götherström C; Department of Clinical Science, Intervention & Technology, Karolinska Institutet, Stockholm, Sweden.
Chitty LS; NHS North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; Genetics and Genomic Medicine, UCL Great Ormond Street Institute of Child Health, London, UK.
DeVile C; Osteogenesis Imperfecta Service, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Disabil Health J ; 15(1): 101168, 2022 01.

Article em En | MEDLINE | ID: mdl-34266787

Assuntos

Pessoas com Deficiência; Osteogênese Imperfeita; Adolescente; Adulto; Criança; Emoções; Humanos; Osteogênese Imperfeita/complicações; Osteogênese Imperfeita/psicologia; Pais/psicologia; Pesquisa Qualitativa

Palavras-chave

Daily life; Emotional consequences; Osteogenesis imperfecta; Qualitative interviews

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Osteogênese Imperfeita / Pessoas com Deficiência Tipo de estudo: Qualitative_research Limite: Adolescent / Adult / Child / Humans Idioma: En Revista: Disabil Health J Assunto da revista: REABILITACAO / SAUDE PUBLICA / SERVICOS DE SAUDE Ano de publicação: 2022 Tipo de documento: Article

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