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The impact of Marfan syndrome on an Aboriginal Australian family: 'I don't like it as much as I don't like cancer'.
McInerney-Leo, Aideen M; West, Jennifer; Meiser, Bettina; West, Malcolm; Toombs, Maree R; Brown, Matthew A; Duncan, Emma L.
Afiliação
  • McInerney-Leo AM; The University of Queensland Diamantina Institute, The University of Queensland, Dermatology Research Centre, Brisbane, Queensland, Australia.
  • West J; Prince Charles Hospital Clinical Unit, School of Clinical Medicine, The University of Queensland, Brisbane, Queensland, Australia.
  • Meiser B; Prince of Wales Clinical School, University of New South Wales, Sydney, New South Wales, Australia.
  • West M; Prince Charles Hospital Clinical Unit, School of Clinical Medicine, The University of Queensland, Brisbane, Queensland, Australia.
  • Toombs MR; Faculty of Medicine, Rural Clinical School, The University of Queensland, Toowoomba, Queensland, Australia.
  • Brown MA; NHS Foundation Trust and King's College London NIHR Biomedical Research Centre, London, UK.
  • Duncan EL; Department of Twin Research & Genetic Epidemiology, School of Life Course Sciences, Faculty of Life Sciences and Medicine, King's College London, London, UK.
J Genet Couns ; 31(3): 620-630, 2022 06.
Article em En | MEDLINE | ID: mdl-34713948
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Síndrome de Marfan / Neoplasias Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Austrália
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Síndrome de Marfan / Neoplasias Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Austrália