Prevalence of unmet pain and symptom management needs in adults with cystic fibrosis.
J Cyst Fibros
; 22(2): 352-355, 2023 03.
Article
em En
| MEDLINE
| ID: mdl-35973901
ABSTRACT
BACKGROUND:
Although people living with CF (PLwCF) commonly report pain and other symptoms, little is known regarding their experiences of living with and accessing treatment for burdensome symptoms.METHODS:
PLwCF completed online questionnaires assessing symptom prevalence and distress and were also asked about experiences accessing pain and symptom treatment, using both closed-ended and free-text entries.RESULTS:
Pain was the most prevalent symptom experienced among the 55 participants (76%) and the symptom that most commonly caused distress (64%). PLwCF not on CFTR modulator therapy were likelier to endorse pain as distressing (p = 0.007). Respondents expressed that their pain was commonly underrecognized and undermanaged, they desired a multi-modal approach to treatment, and noted concerns about disease progression affecting their symptom management options.CONCLUSIONS:
Our study suggests that PLwCF often have unmet symptom management needs that may impair quality of life.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Fibrose Cística
Tipo de estudo:
Diagnostic_studies
/
Prevalence_studies
/
Risk_factors_studies
Limite:
Adult
/
Humans
Idioma:
En
Revista:
J Cyst Fibros
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Estados Unidos