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Young XLH Patients-Reported Experience with a Supportive Care Program.
Rothenbuhler, Anya; Gueorguieva, Iva; Lichtenberger-Geslin, Lydia; Audrain, Christelle; Soskin, Sylvie; Bensignor, Candace; Rossignol, Sylvie; Bertholet-Thomas, Aurélia; Naudeau, Lorelei; Bacchetta, Justine; Linglart, Agnès.
Afiliação
  • Rothenbuhler A; AP-HP, INSERM, Endocrinology and Diabetes for Children, Physiologie et Physiopathologie Endocriniennes, Reference Center for Rare Disorders of Calcium and Phosphate Metabolism, Filière OSCAR, and Platform of Expertise for Rare Disorders, ERN for Rare Endocrine Disorders and ERN BOND, Bicêtre Paris S
  • Gueorguieva I; Pediatric Endocrine Unit Children's Hospital Jeanne de Flandre, Lille University Hospital, Lille, France.
  • Lichtenberger-Geslin L; Pediatric Department, Abbeville Hospital, Abbeville, France.
  • Audrain C; AP-HP, INSERM, Endocrinology and Diabetes for Children, Physiologie et Physiopathologie Endocriniennes, Reference Center for Rare Disorders of Calcium and Phosphate Metabolism, Filière OSCAR, and Platform of Expertise for Rare Disorders, ERN for Rare Endocrine Disorders and ERN BOND, Bicêtre Paris S
  • Soskin S; Pediatric Department, Strasbourg University Hospital, Strasbourg, France.
  • Bensignor C; Departement of Endocrino-Pediatry, Dijon University Hospital, Dijon, France.
  • Rossignol S; Pediatric Department, Strasbourg University Hospital, Strasbourg, France.
  • Bertholet-Thomas A; Pediatric Nephrology, Rheumatology, and Dermatology Unit, Reference Center for Rare Diseases of Calcium and Phosphate Metabolism, Reference Center for Rare Renal Diseases, Filières Maladies Rares OSCAR ORKiD and ERK-Net, INSERM 1033, Hôpital Femme Mère Enfant, Faculté de Médecine Lyon Est, Bron, Fra
  • Naudeau L; Patientys-Webhelp Medica, Boulogne-Billancourt, France.
  • Bacchetta J; Pediatric Nephrology, Rheumatology, and Dermatology Unit, Reference Center for Rare Diseases of Calcium and Phosphate Metabolism, Reference Center for Rare Renal Diseases, Filières Maladies Rares OSCAR ORKiD and ERK-Net, INSERM 1033, Hôpital Femme Mère Enfant, Faculté de Médecine Lyon Est, Bron, Fra
  • Linglart A; AP-HP, INSERM, Endocrinology and Diabetes for Children, Physiologie et Physiopathologie Endocriniennes, Reference Center for Rare Disorders of Calcium and Phosphate Metabolism, Filière OSCAR, and Platform of Expertise for Rare Disorders, ERN for Rare Endocrine Disorders and ERN BOND, Bicêtre Paris S
Patient Prefer Adherence ; 17: 1393-1405, 2023.
Article em En | MEDLINE | ID: mdl-37325587
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Patient Prefer Adherence Ano de publicação: 2023 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Patient Prefer Adherence Ano de publicação: 2023 Tipo de documento: Article