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Patient-reported, health economic and psychosocial outcomes in patients with Friedreich ataxia (PROFA): protocol of an observational study using momentary data assessments via mobile health app.
Buchholz, Maresa; Weber, Niklas; Borel, Stephanie; Sayah, Sabrina; Xie, Feng; Schulz, Jörg B; Reetz, Kathrin; Boesch, Sylvia; Klopstock, Thomas; Karin, Ivan; Schöls, Ludger; Grobe-Einsler, Marcus; Klockgether, Thomas; Davies, Elin Haf; Schmeder, Madeleine; Nadke, Andreas; Michalowsky, Bernhard.
Afiliação
  • Buchholz M; Translational Health Care Research, German Center for Neurodegenerative Diseases, Site Rostock/Greifswald, Greifswald, Germany maresa.buchholz@dzne.de.
  • Weber N; Translational Health Care Research, German Center for Neurodegenerative Diseases, Site Rostock/Greifswald, Greifswald, Germany.
  • Borel S; Paris Brain Institute (ICM - Institut du Cerveau), INSERM, CNRS, Assistance Publique-Hôpitaux de Paris (AP-HP), Sorbonne University, Paris, France.
  • Sayah S; Paris Brain Institute (ICM - Institut du Cerveau), INSERM, CNRS, Assistance Publique-Hôpitaux de Paris (AP-HP), Sorbonne University, Paris, France.
  • Xie F; Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada.
  • Schulz JB; Department of Neurology, RWTH Aachen University, Aachen, Germany.
  • Reetz K; Department of Neurology, RWTH Aachen University, Aachen, Germany.
  • Boesch S; Clinical Department of Neurology, Medical University Innsbruck, Innsbruck, Austria.
  • Klopstock T; Friedrich-Baur-Institut, Department of Neurology, Ludwig Maximilians University of Munich, Munich, Germany.
  • Karin I; Friedrich-Baur-Institut, Department of Neurology, Ludwig Maximilians University of Munich, Munich, Germany.
  • Schöls L; Hertie Institute for Clinical Brain Research and Center of Neurology, University Hospital Tübingen, Tubingen, Germany.
  • Grobe-Einsler M; German Center for Neurodegenerative Diseases, Bonn, Germany.
  • Klockgether T; Department of Neurology, University Hospital Bonn, Bonn, Germany.
  • Davies EH; German Center for Neurodegenerative Diseases, Bonn, Germany.
  • Schmeder M; Department of Neurology, University Hospital Bonn, Bonn, Germany.
  • Nadke A; Aparito Ltd, Wrexham, UK.
  • Michalowsky B; Association Française de l'Ataxie de Friedreich, Hirson, France.
BMJ Open ; 13(8): e075736, 2023 08 01.
Article em En | MEDLINE | ID: mdl-37527887
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Ataxia de Friedreich / Telemedicina / Aplicativos Móveis Tipo de estudo: Health_economic_evaluation / Observational_studies / Qualitative_research Limite: Adult / Humans Idioma: En Revista: BMJ Open Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Alemanha
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Ataxia de Friedreich / Telemedicina / Aplicativos Móveis Tipo de estudo: Health_economic_evaluation / Observational_studies / Qualitative_research Limite: Adult / Humans Idioma: En Revista: BMJ Open Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Alemanha