Paediatric Palliative Care in a Reference Centre of Inherited Metabolic Diseases.

Saraiva, Bárbara Martins; Santos, Susana; Ferreira, Ana Cristina; Paiva, Mafalda

Saraiva, Bárbara Martins; Santos, Susana; Ferreira, Ana Cristina; Paiva, Mafalda.

Afiliação

Saraiva BM; Hospital Dona Estefânia, Centro Hospitalar Lisboa Central Department of Pediatrics Lisbon Portugal.
Santos S; Hospital Dona Estefânia, Centro Hospitalar Lisboa Central Department of Pediatrics, Pediatric Palliative Care Team Lisbon Portugal.
Ferreira AC; Hospital Dona Estefânia, Centro Hospitalar Lisboa Central Department of Pediatrics, Reference Centre of inherited Metabolic Diseases Lisbon Portugal.
Paiva M; Hospital Dona Estefânia, Centro Hospitalar Lisboa Central Department of Pediatrics, Pediatric Palliative Care Team Lisbon Portugal.

Endocr Metab Immune Disord Drug Targets ; 2023 Sep 14.

Article em En | MEDLINE | ID: mdl-37711121

Palavras-chave

Inherited metabolic diseases;; Lifelong care;; Neurologic impairment;; Pediatric palliative care;; Symptom burden;; Symptom management;

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Endocr Metab Immune Disord Drug Targets Assunto da revista: ALERGIA E IMUNOLOGIA / ENDOCRINOLOGIA / METABOLISMO / TERAPIA POR MEDICAMENTOS Ano de publicação: 2023 Tipo de documento: Article

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