Leveraging stories of cardiac amyloidosis patients of African ancestry or descent to support patient-derived data elements for efficient diagnosis and treatment.

Hendricks-Sturrup, Rachele M; Edgar, Lauren M; Lu, Christine Y

Hendricks-Sturrup, Rachele M; Edgar, Lauren M; Lu, Christine Y.

Afiliação

Hendricks-Sturrup RM; National Alliance Against Disparities in Patient Health, Woodbridge, VA, United States.
Edgar LM; Department of Population Medicine, Harvard Pilgrim Healthcare Institute and Harvard Medical School, Boston, MA, United States.
Lu CY; Duke-Margolis Center for Health Policy, Washington, DC, United States.

Front Pharmacol ; 14: 1276396, 2023.

Article em En | MEDLINE | ID: mdl-38074115

Palavras-chave

African; amyloidosis; data element; diagnosis; electronic health record; patient-reported outcomes; rare disease

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Front Pharmacol Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

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