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Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer.
Maya, Sravannthi; Chittem, Mahati; Chawak, Shweta; Parker, Patricia A; Banerjee, Smita C.
Afiliação
  • Maya S; Department of Liberal Arts, Indian Institute of technology Hyderabad, Hyderabad, India.
  • Chittem M; The Raft, Psycho-Social and Counseling Support Center, Hyderabad, India.
  • Chawak S; Department of Liberal Arts, Indian Institute of technology Hyderabad, Hyderabad, India.
  • Parker PA; Jindal School of Psychology and Counselling, O.P. Jindal Global University, Haryana, India.
  • Banerjee SC; Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York, USA.
Death Stud ; 48(9): 905-915, 2024.
Article em En | MEDLINE | ID: mdl-38117258
ABSTRACT
Caregiving in the South Asian context is often assumed by family automatically for the person with cancer (PWC). In this paper, we applied the disclosure decision-making model (DD-MM) to understand the motives behind cancer prognosis disclosure (or not) by caregivers to the PWC. Fifty caregivers participated in semi-structured interviews; and data were analyzed using Framework Approach. For the disclosing caregivers, some of the themes that emerged were consistent with the DD-MM framework while others were not. In particular, the theme "recipient assessment" was part of the DD-MM framework, while others such as unmet communication needs, caregiver self-reflection, and family support were outside of the framework. In contrast, for the non-disclosing caregivers, the reasons for nondisclosure fit very concisely into the DD-MM framework, particularly with information assessment, recipient assessment, and (non) disclosure efficacy. This study has significant implications for development of communication skills trainings around holding family meetings in India.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Prognóstico / Revelação da Verdade / Família / Cuidadores / Neoplasias Limite: Female / Humans / Male País/Região como assunto: Asia Idioma: En Revista: Death Stud Assunto da revista: PSICOLOGIA / SERVICOS DE SAUDE Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Índia

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Prognóstico / Revelação da Verdade / Família / Cuidadores / Neoplasias Limite: Female / Humans / Male País/Região como assunto: Asia Idioma: En Revista: Death Stud Assunto da revista: PSICOLOGIA / SERVICOS DE SAUDE Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Índia