Hepatitis B and C are
chronic diseases with mental and
social impacts which can result in poor
quality of life. The aim of this study was to determine the experiences of stigma in a sample of
hepatitis B- and C-positive
patients in
Pakistan. In a
cross-sectional study, 140
inpatients and
outpatients from 3 tertiary-care
hospitals in Islamabad and Rawalpindi answered a semi-structured
questionnaire about stigma experienced from
relatives,
friends,
spouse and
health-care providers, and about
work/financial problems. The majority of
patients [75%] said they had had to change their
lifestyle, and significantly more were
males than
females.Stigma was marked in terms of
disease transmission, with 66% of
patients fearing that they could transmit the
infection to others; 19% said that
family members avoided sharing towels,
soap and
eating and
drinking utensils. Marital relationships were affected for 51% of married
patients who had told their
spouse.
Patients' comments showed a sense of
family and societal discrimination resulting in
feelings of disappointment and isolation