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1.
GM1-gangliosidosis: The caregivers' assessments of symptom impact and most important symptoms to treat.
Am J Med Genet A
; 191(2): 408-423, 2023 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-36541412
2.
Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system.
BMC Pediatr
; 22(1): 90, 2022 02 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-35151296
3.
Chronic disease management perspectives of colorectal cancer survivors using the Veterans Affairs healthcare system: a qualitative analysis.
BMC Health Serv Res
; 18(1): 171, 2018 03 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-29523146
4.
Cost-effectiveness of Community-Based Minigrants to Increase Physical Activity in Youth.
J Public Health Manag Pract
; 23(4): 364-369, 2017.
Artículo
en Inglés
| MEDLINE | ID: mdl-27798526
5.
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening.
Eur J Hum Genet
; 32(4): 392-398, 2024 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-36973394
6.
Specificity of Early Childhood Hyperphagia Profiles in Neurogenetic Conditions.
Am J Intellect Dev Disabil
; 129(3): 175-190, 2024 May 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-38657964
7.
Parental coping with uncertainties along the severe combined immunodeficiency journey.
Orphanet J Rare Dis
; 17(1): 390, 2022 10 27.
Artículo
en Inglés
| MEDLINE | ID: mdl-36303152
8.
Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study.
JMIR Pediatr Parent
; 5(1): e30941, 2022 Feb 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-35142618
9.
Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome.
J Patient Rep Outcomes
; 6(1): 40, 2022 Apr 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-35467223
10.
Expert Evaluation of Strategies to Modernize Newborn Screening in the United States.
JAMA Netw Open
; 4(12): e2140998, 2021 12 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-34964853
11.
Food and Non-Food-Related Behavior across Settings in Children with Prader-Willi Syndrome.
Genes (Basel)
; 11(2)2020 02 17.
Artículo
en Inglés
| MEDLINE | ID: mdl-32079283
12.
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.
J Am Med Inform Assoc
; 27(3): 429-436, 2020 03 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-31913479
13.
Understanding women veterans' preferences for peer support interventions to promote heart healthy behaviors: A qualitative study.
Prev Med Rep
; 10: 353-358, 2018 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-29868391
14.
Patient perceptions of a comprehensive telemedicine intervention to address persistent poorly controlled diabetes.
Patient Prefer Adherence
; 11: 469-478, 2017.
Artículo
en Inglés
| MEDLINE | ID: mdl-28424543
15.
Barriers and Facilitators to Adoption of Genomic Services for Colorectal Care within the Veterans Health Administration.
J Pers Med
; 6(2)2016 Apr 28.
Artículo
en Inglés
| MEDLINE | ID: mdl-27136589
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