Detalles de la búsqueda
1.
'High hopes for treatment': Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases.
Health Expect
; 27(3): e14063, 2024 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-38711219
2.
Parents' and adolescents' perspectives and understanding of information about childhood cancer precision medicine.
Cancer
; 129(22): 3645-3655, 2023 11 15.
Artículo
en Inglés
| MEDLINE | ID: mdl-37376781
3.
Parents' expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial.
Cancer
; 129(22): 3620-3632, 2023 11 15.
Artículo
en Inglés
| MEDLINE | ID: mdl-37382186
4.
Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives.
Br J Cancer
; 129(10): 1634-1644, 2023 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-37726477
5.
'Like ships in the night': A qualitative investigation of the impact of childhood cancer on parents' emotional and sexual intimacy.
Pediatr Blood Cancer
; 69(12): e30015, 2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36200485
6.
'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics.
Health Expect
; 25(6): 3175-3191, 2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36307981
7.
Health service and medication use of parents of childhood cancer survivors: a controlled comparison study.
Acta Oncol
; 60(10): 1325-1334, 2021 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-34308777
8.
Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis.
Death Stud
; 45(9): 702-713, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-31656129
9.
Survivorship Care Plans in Cancer: A Meta-Analysis and Systematic Review of Care Plan Outcomes.
Oncologist
; 25(2): e351-e372, 2020 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-32043786
10.
Financial toxicity of childhood cancer and changes to parents' employment after treatment completion.
Pediatr Blood Cancer
; 67(7): e28345, 2020 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-32333636
11.
Understanding parents' communication experiences in childhood cancer: a qualitative exploration and model for future research.
Support Care Cancer
; 28(9): 4467-4476, 2020 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-31927756
12.
Brief report: Bereaved parents informing research design: The place of a pilot study.
Death Stud
; 43(1): 62-69, 2019.
Artículo
en Inglés
| MEDLINE | ID: mdl-29474116
13.
Abstract recall of a happy memory to repair sad mood in dysphoria: A possible link to negative cognition.
Memory
; 23(6): 817-28, 2015.
Artículo
en Inglés
| MEDLINE | ID: mdl-24984195
14.
Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive-affective mechanisms.
Acta Oncol
; 58(2): 189-190, 2019 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-30264637
15.
Author reply.
Intern Med J
; 49(6): 808-809, 2019 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-31185532
16.
It provides families with other avenues for treatment when there are no other options Surgeons' perspectives of being part of a precision medicine trial for poor prognosis paediatric cancer patients: A short report.
Cancer Med
; 13(9): e7209, 2024 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-38716651
17.
Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: the PREDICT study.
BMJ Open
; 13(5): e070082, 2023 05 30.
Artículo
en Inglés
| MEDLINE | ID: mdl-37253493
18.
Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial.
J Pers Med
; 13(7)2023 Jun 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-37511646
19.
Something's got to give: time-cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies.
Intern Med J
; 47(9): 1088-1089, 2017 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-28891181
20.
Parents' understanding of genome and exome sequencing for pediatric health conditions: a systematic review.
Eur J Hum Genet
; 30(11): 1216-1225, 2022 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-35999452